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February 19, 2025
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Members came together to share what has helped them manage balance problems, a common and frightening challenge in their Parkinson's journey.... Read more

Members came together to share what has helped them manage balance problems, a common and frightening challenge in their Parkinson's journey. Several members recommended Rock Steady Boxing, physical therapy, leg-strengthening exercises, heel-to-toe walking, and tools like rollators, walkers, ankle braces, and even protective helmets to stay safer. A recurring theme was the importance of staying vigilant, moving slowly and deliberately, checking medications with your doctor, and leaning on humor and community support to keep going.

A MyParkinsonsTeam Member

Full disclosure: I have been ground surfing since I was diagnosed with Adult Onset Epilepsy. I didn't realize this was early training but here we are.
My tips on horizontal versus vertical status disruption are as follows:
1. Your feet are your enemy and have been known to give incorrect information.
2. Your eyes Are lying to you and not just about....well, you know who...oh, not your symptom....read on.
3. Turns are dangerous. Therefore I recommend it done with authority and really milk the moment as though you are about to address the serfs in your kingdom. This is also the time to really polish the art of furniture walking 🤭. This can be awkward if you are a minimalist but I digress. This does take practice. It can be challenging in unfamiliar areas....I will address that later. Again I recommend a commanding presence as you scroll through the edges, pause as though punctuating each moment. (this is also handy for the sudden 'off' moments.)
4. Survey the area in front of you as to bump, bruise or that's gonna leave a mark.
5. Remove pride from your life and stock lots of bandaids in multiple sizes.
6. Parkinson's sucks and you will fall. Pay attention. I try to remember to save the brain!! ( I know right?!) Don't need a big mess. Tuck and roll is your new normal!' and CARRY YOUR phone.!! If you do fall rethink everything you did prior and what happened as you fall, direction and all. For me it is a midline that once crossed I am unable to correct....and... here comes the Tuck and roll protect the brain aim soft and stick the landing with minimal medical assistance required.....
7. Establish signal's.... while 'mom's down' is a common call, falling in the closet in the bedroom involved more creativity as my body landed in a rather difficult position... I remained so for a while unable to make sufficient noise. I realized I needed to learn Morse code. I used a hanger. Wooden hangers are superior.
8. When you get to the ER be clear. When you say you were hit by a squirrel or Mr Skittles got me, they may not understand, It will need further explanation. On a positive note a good story will lighten the day among the nurses,... they like a good story too 😉
9. Keep a list of All Your Medicine and share it with 2 people who are most often with you.
10. I'm sorry to say that once Parkinson's moves in, your career as a tight rope entertainer....is over. I am also banned from lawn furniture 😕 Each stage requires adjustment. Whatever stage you are in, it's better than the next so don't let the ground get ya down 😂 I personally do my best to be the first one to laugh, it breaks the tension. It also starts the healing process. Studies have shown people who laugh through pain have better lives.
( I made that up 🤣)

February 22, 2025
A MyParkinsonsTeam Member

My balance has improved significantly over the past 2 years doing strength and balance weight training (2.5 hours/week) and walking (90 minutes/week). Overall, I exercise 6 days/week,

February 23, 2025
A MyParkinsonsTeam Member

Never think that you have it under control, It''s something that you have to guard you're self from doing. Take it from someone who's head has met side walks, guard rails, stairs, bushes, walls, asphalt, among other things. Always stay vigilante because you'll never know the next time your going to fall, and you will fall again, so be extra careful because it's not going to go away anytime soon.

February 22, 2025
A MyParkinsonsTeam Member

I too love your post above Melissa. Excellent advice but with HUMOR. Very important to have with Parkinson's. I was diagnosed in 2014 and am 77 years old. I have fallen 8 times, fortunately none of them with serious injuries...except for adding to my fear of falling which is with me all the time. However, the good news is that I haven't fallen for 6 months whis is awesome. I think it's because I'm just being more careful. Great advice above from everyone. Thanks for being here and sharing.

February 26, 2025
A MyParkinsonsTeam Member

Symptoms started 15 years ago, diagnosis for essential tremors 12 years ago, Parkinson's 8 years, been put on palliative care. So when I tell the doctor that I live alone, have two dogs that I walk 3 or 4 times a day, and still drive, and have a bad back, they look at me like I'm crazy. Parkinson's you may kill me but you'll never beat me!! Also saw the surgeon for preop for the deep brain stimulation procedure last week.

February 22, 2025

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