Gary
Have you or a loved one been diagnosed with Vascular Parkinsonism?
My wife was diagnosed with VP 10 months ago.
I was her sole caregiver until I couldn’t do it by myself anymore.
I’ve spent many hours searching for a medical professional that specializes in VP and I keep landing at a dead end. Same is true with a VP Support group. I’ve never been able to find one.
Vp is different than PD in many ways . No medication has been found to help. It’s caused from small strokes that damage the part of the brain controlling lower body functions on both sides . Tremors aren’t as common. Diagnosis is challenging. Symptoms can come fast.
And finding anyone that really understands it is difficult. It’s been impossible for me.

My spouses symptoms came on fast. Her lower body functions are severely impaired. Besides her loss of control to help her walk and stand, the most difficult issue might be her incontinence. She can’t anticipate when she may have bowel and bladder activity, which obviously creates a host of other problems.
Her ability to reason, her memory, her impulses, and her moods are not what they were just months ago. She can fall three times a day.
While VP gets mentioned here, I have found that the medical professional world knows very little about it and how to manage it. And we live in a part of the US with some incredible hospitals and doctors. And lots of them.
The descriptions of VP are a bit vague, and yet some studies suggest 1 out of ten or twenty PD patients would represent 1 VP diagnosed patient. If that’s true, I don’t understand why so few know anything about it or how to treat it the best possible way.
A number of people have asked questions about VP on this site. They wonder, does anyone else on this site have VP? Could there be enough VP patients and caregivers to consider a subgroup? And if so, might there be opportunities to understand more about this disease, learning from each others experiences?

What I would like to know is what symptommatogly to anticipate with the type of PD. I would also like to know if any organs may be involved during the course of this disease.