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A MyParkinsonsTeam Member asked a question 💭
Pevely, MO
March 3, 2025
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A MyParkinsonsTeam Member

other assessments overview:
Unified Parkinson’s Disease Rating Scale (UPDRS)
The UPDRS is often considered to be the most comprehensive and holistic Parkinson’s disease disability scale as it combines elements of a number of other rating scales to provide a picture of the progression of the disease and its impact on a person’s life. It is typically completed by a healthcare professional; factoring in both the patient’s answers and a physical examination. There are 5 sections to this scale:

Evaluation of cognitive ability, behaviour, and mood
Evaluation of daily living tasks
Motor function
Complications from therapy
Hoehn and Yahr scale
Schwab and England Activities of Daily Living Scale.
Shwab and England Activities of Daily Living Scale
Where the Hoehn and Yahr Parkinson’s disease disability scale is primarily concerned with the manifestation of symptoms, the Shwab and England Activities of Daily Living scale examines the impact of those symptoms on a person’s daily life. As with many neurological disorders, people with Parkinson’s will find living independently to be more and more difficult as the disease progresses. This scale factors in both how quickly tasks and chores can be done, and how much support is needed.

Those who rank highly on this scale are considered to be very independent; not needing any additional support. As the percentage score decreases, more and more time will be taken for tasks. Tasks might take three times as long. Eventually, the individual might not be able to help with any chores.

This scale gives great insight into the support needs of an individual. The lower their score, the more help they’ll need to complete daily tasks. When putting together a treatment and care plan, then, this insight is hugely valuable.

March 5, 2025
A MyParkinsonsTeam Member

Hi Denise. I won’’t repeat all of the ideas presented, as for me, I googled the stages and and use them in a more qs continuum since in really symtoms can be found in more than one stage .I don’t refer to them very often became I am the way I am and how bad qm I . Relatively speaking..

March 9, 2025
A MyParkinsonsTeam Member

YEP, as Time goes on, you will start to Notice the slightest things you did before. I know how much more difficult. It changes are very obvious and you will know something's going on. See Your neurologist will and tell you what stage you are in. That's the best wayto find out what say you're in. 🙋‍♀️Carol

March 6, 2025
A MyParkinsonsTeam Member

reply 2 of 2 -
3-The Battle Stage - This is the most productive stage. We refuse to accept the limitations PD tries to impose on us, and learn to reteach ourselves how to walk, balance, button clothing, etc. etc.
We learn to find Joy every day & do the things we have always loved to do, even if it is a bit slower.
Unfortunately, some People with PD get stuck in Stage 1 & never get to Stage 2 or 3.
4-Slight degeneration - OK, I admit again, PD is a progressive disease. But if we keep fighting as we learned in Stage 3, we are able to live much more normally than the PwP’s who are still stuck in Stage 1.
5-I don’t know what is next. I am at Stage 4. PD does Not shorten a person's expected lifespan. We meet our Maker the same way everyone else does: heart disease, cancer, COVID, unintentional injuries (PRACTICE your PT every day!), stroke, chronic lower respiratory diseases & all the other normal causes. Notice that PD is Not in that list. Sedentary living, improper nourishment, & heading for the floor or the ground (falling) will shorten it. But that is up to you. Get out of bed & off that recliner. Install hand rails & poles inside & out. So what if it looks like a handicapped person lives there. The beautiful railingless poleless home is worthless to you in your recliner or your bed. Use a cane (the kind with 4 feet at the bottom so it doesn't fall over when you aren't using it). Get your physical or occupational therapist to show you how to use it & PRACTICE! Keep the skills you learned in Stage 3. If you skipped Stage 3, enlist the help of a physical & occupational therapist. They reteach balance & walking all the time with great success. The brain & system of nerves are wonderful! David Vincent had half his brain amputated yet he functions normally! People recover from balance & walking impairment after strokes. My husband did. Violinists teach themselves incredibly difficult music. I did. It is all a matter of analysis & Practice!
I suppose I will continue to degenerate & slow down, but I will fight it ("Do not go gently into that good night") & I will keep my Joy all the way!
Will You?

March 6, 2025
A MyParkinsonsTeam Member

overview
Hoehn and Yahr scale
The Hoehn and Yahr scale was originally published in 1967 and focuses on the physical effects of Parkinson’s as it progresses. Originally, there were 5 stages of progression, starting with “symptoms on one side” and ending with “needing a wheelchair or bedridden”. However, 3 additional stages have since been added as follows:

Stage 0 – No symptoms
Stage 1 – Symptoms on one side only (unilateral)
Stage 1.5 – Symptoms are unilateral and also involve the neck and spine
Stage 2 – Symptoms on both sides but no impairment of balance
Stage 2.5 – Mild symptoms on both sides, with recovery when the ‘pull’ test is given (the doctor stands behind the person and asks them to maintain their balance when pulled backwards)
Stage 3 – Balance impairment, physically independent
Stage 4 – Severe disability, but still able to walk or stand unassisted
Stage 5 – Needing a wheelchair or bedridden unless assisted

March 5, 2025

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