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I have always exercised vigorously. So now that I have vascular parkinsonism , what good is it to do more and more to no avail? I have worked hard, exercised hard, with little benefit. My feet are numb, and the skin on my feet has sores; a lot! It has to do with circulation;; what can be done about it. I get no relief
It is very frustrating. It is affecting my mental health which I was handling well until recently. I would rather chat with a friend read. watch a good movie than knock… read more
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Members responded to the question of whether being pushed to do PT and exercise feels more harmful than helpful, with many sharing that the... Read more
@A MyParkinsonsTeam Member a Vegas nerve stimulator? Is that when you draw two queens in blackjack? 😁♥️
Very well said!!! I agree.
Being hounded to do anything is negative and diminishing. Although I do work with an OT and a PT that is my choice. At the age of 82 my family feels I should be able to do whatever I want, eat what I want and I agree. I want to enjoy what time I have remaining not live longer than I was intended to and be a miserable head on a pillow or in. a home. I love life and want to continue to do so and then move on with grace.
🌈TheaD
It is very hard to find exercises that are not too hard, not dangerous and will help. Full disclosure: I am caregiver. Though every PT session helped a little, the only one that really helped my husband was the expert who DID THE SPECIAL MASSAGE -- I think it is called myofascial release but I am not sure. Anyway, it DOES help, but it does NOT make symptoms and stiffness disappear, but it slows down the progression and can give you a boost. Unfortunately, I have now inherited my husband's distaste for exercise and my once active self is now floundering. But that's on ME not HIM and starting June 1, I am leaving him with an aide so I can start swimming.
Oh hell yes...I lived idle, and I'll bloody die idle. What's the point of living longer if the extra days are full of doing things you hate?
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