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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
May 20, 2025
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A MyParkinsonsTeam Member

Yes,very painful

May 21, 2025
A MyParkinsonsTeam Member

Yes. It truly makes you understand how much the medicine helps.

May 25, 2025
MyParkinsonsTeam

Yes, pain can occur during "off" periods when dopamine levels are low. These "off" periods happen when medication levels drop between doses, especially after several years of levodopa treatment. During these times, Parkinson's symptoms may become more noticeable and uncomfortable.

Managing these fluctuations often requires Show Full Answer

Yes, pain can occur during "off" periods when dopamine levels are low. These "off" periods happen when medication levels drop between doses, especially after several years of levodopa treatment. During these times, Parkinson's symptoms may become more noticeable and uncomfortable.

Managing these fluctuations often requires adjusting medication timing or switching to extended-release forms of medication. Working with your healthcare provider to optimize your medication schedule can help minimize these "off" periods and associated discomfort. Some lifestyle modifications may also help manage these periods when dopamine levels are lower. Physical activity and maintaining good sleep habits have been shown to help with symptom management during "off" times. If you're experiencing significant pain during these periods, it's important to discuss this with your healthcare provider as they may need to adjust your treatment plan.

May 20, 2025

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