Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Mountain Home, ID
March 25
 · 
Be the first to react
Why Tracking Parkinson’s Progression Matters: Use This Tool To Track Symptoms Read Article...
A MyParkinsonsTeam Member

You are not alone. Yes, I have horrible cramps in my legs at night. This has really messed with my sleep. I have tried numerous things and while some have decreased the intensity, the cramps are still there. I have tried magnesium tablets, cream/oil before going to bed. Drink a lot of water or Gatorade to prevent dehydration. Cold packs, massage, over the counter pain relief medication, elevated legs, walking bare foot on cold tile floor (this is strange but it gives me some relief). Have spoken with doctor and no changes in my meds. If anyone else tried anything else and it works, please let me know.

March 26
A MyParkinsonsTeam Member

The pain starts as soon as I get out of bed, and still there when I go to bed again at night :( Starts in lower back and works its way up to between my shoulder blades.

March 27
MyParkinsonsTeam

Are charley horse-style cramps in the back muscles common with Parkinson's?

Yes, muscle cramps and spasms can occur with Parkinson's disease. These painful, cramping sensations are often related to dystonia, which is a movement disorder that can develop as part of Parkinson's or as a side effect of treatment.

Dystonia Show Full Answer

Are charley horse-style cramps in the back muscles common with Parkinson's?

Yes, muscle cramps and spasms can occur with Parkinson's disease. These painful, cramping sensations are often related to dystonia, which is a movement disorder that can develop as part of Parkinson's or as a side effect of treatment.

Dystonia typically feels like a cramp, pull, or twist in the muscles. It can affect various parts of the body including the arms, legs, trunk, neck, and back. Unlike other movement issues, dystonia can be quite painful and may freeze the affected area into an uncomfortable position.

These cramps are more likely to happen when dopamine levels are low, such as:
* First thing in the morning before taking medication
* When a medication dose is wearing off
* During "off" periods between doses

If you're experiencing these back cramps regularly, it's worth discussing with your neurologist. They can help determine if it's dystonia and may adjust your medication timing or dosage to help manage these symptoms better.

March 25

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Mountain Home, ID