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When I first got diagnosed I only had an occasional tremor but once I started levo/carbo my symptoms seem to have gotten worse or is it just in my mind!
@A MyParkinsonsTeam Member. Sometimes it seems within an hour of taking the med my tremors double but some days go by and I hardly shake at all ( few and far in-between though!
@A MyParkinsonsTeam Member Colleen it’s a matter of constant repetition of how you need to move your body and to achieve desired results otherwise you tend to move haphazardly. My son and therapists help by talking me through the most efficient way to move. For instance take a full step towards the wall,now take a half step towards the wheelchair and sit. Each movement requires constantlrepetition and it’s a slow process. However I am making progress and eventually certain movements should become automatic and make me more independent and less scattered in trying to accomplish simple tasks. I also repeat. directions to myself and don’t try to multitask. Many people use this tip when using a walker to avoid falling or freezing. Thanks for your interest.
🌈TheaD
Water fabulous question Colleen I would love to know and I hope the answers not listening to marching band music ! 😄😄
My issue was I had just gone through a stem cell transplant for my cancer, and the chemo drug I was on, made my Parkinson's symptoms worse. Once I went into remission and stopped the drug, my neurologist said my symptoms improved 30%. He has seen this happen with this drug, Revlimed, before. I'm glad my symptoms have subsided. I still take car/lev but at a much lower dose. I've been in remission for 4 years, I hope for many more. Now my time can be spent dealing with my Parkinson's..
I had extremely adverse effects to carbadopa levodopa and Rytary. It seems I cannot tolerate either in any dosage. Neurologist to reintroduce and even at .5 mg once daily had adverse effects. I ended up in the ER twice so it’s permanently off my list of medications
🌈TheaD
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