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A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

I gave up on laced shoes some time ago, due to failing fingers, but also all the effort of bending over to put them on (I realise how pathetic that must sound to the unafflicted, hoping people here will sympathise)!

So now I am the slip-on king...but I get the feeling they make my clawing toes worse; almost like my brain feels my shoes are somehow less secure, and so is telling my feet to hold on to them.

Conversely, apart from following the good old on/off l-dopa cycle, the only relief I get… read more

July 20, 2025
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Answer Summary

Members connected over the shared struggle of clawed or curled toes related to Parkinson's, with many agreeing that going barefoot at home... Read more

Members connected over the shared struggle of clawed or curled toes related to Parkinson's, with many agreeing that going barefoot at home provides the most relief. Several members offered practical tips, including wide toe box shoes like Hoka or BRONAX, gel toe separators, Velcro-strap sneakers, daily toe stretches, warm soaks, and shoe inserts to help release tight ligaments. A recurring theme was the challenge of managing footwear and toenail care with limited hand dexterity, along with emotional solidarity around adapting daily routines without shame.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I prefer to wear moccasins, but the authentic ones with soft soles so that they feel like I'm barefoot are hard to find, even here in the States. I haven't had any in years. The downside of moccasins is that they don't come in the slip on style that I have ever known of, but my last pair had a zipper in the back of each one.... unless you want the kind with fleece inside. People usually wear those as house slippers. @A MyParkinsonsTeam Member has a couple of pairs. They're too warm for me. I just want soft leather.

July 21, 2025
A MyParkinsonsTeam Member

I only wear shoes when I have to. Then the games begin 🙃

July 26, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I hesr you. My toes have always been short, stubby, and rather clawed. Until recently, I didn't realize the connection to the genetic trait that eventually developed into Parkinson's. My toes are so short and stubby that the nails on my pinky toes are barely there, but there they are. They still grow enough to catch on socks, or nylons. which you can be thankful that you don't have to deal with because they're worse than socks, and blankets, sheets and stuff that no doubt you do deal with. I need to clip those tiny little nails at least as often as the others, but they're harder to reach, and it's so easy to accidentally clip too much which is that much more painful. I really don't want anyone else to clip them because no one knows how far is too far as well as I know, ya know?

July 24, 2025
A MyParkinsonsTeam Member

I take time to treat myself to a pedicure.

July 23, 2025
A MyParkinsonsTeam Member

I also have that problem. No matter what shoes I try my feet hurt. I also havelow back pain

July 23, 2025

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