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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

Paper straws that can't get you to the bottom of a milk shake before they just collapse. Cotton wool buds that can't clean anything because they've changed the stick from plastic to paper
Pop bottles that you can't open (or worse, close again) because some faceless Eurocrat has decreed that the lid must not come off
Goods in general that you don't buy, you just subscribe to.
We had GDPR legislation that gave us (some) control over who held our data. Now we have the Online Safety act that… read more

August 17, 2025 (edited)
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A MyParkinsonsTeam Member

I try to be a good global citizen, but I also want to have fun, especially now. I do the best I can, do I fall short sometimes? Absolutely,
I don't think there's more sh*t, I think it's just different sh*t.
Take care Nigel

August 18, 2025 (edited)
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member see I don't even accept the logic. If I accept that there's this floating island of pop bottle lids in the ocean, how did they get there from a landlocked UK city like mine?

And where are the associated bottles?

Cos the argument seems to be that the public are massively irresponsible with kids, but environmental angels with bottles. Sorry no. It's not logical.

They got the wording wrong. It should read "I am attached to float to the plastic island in the ocean together".

August 17, 2025
A MyParkinsonsTeam Member

Functionality is often sacrificed at the expense of being environmentally friendly....😝

August 17, 2025
MyParkinsonsTeam

Question: How can I cope with feelings of frustration about changes in everyday life?

It's completely understandable to feel frustrated by changes that make daily tasks more challenging, especially when living with Parkinson's disease. Finding moments of normalcy and focusing on what brings joy can help balance these Show Full Answer

Question: How can I cope with feelings of frustration about changes in everyday life?

It's completely understandable to feel frustrated by changes that make daily tasks more challenging, especially when living with Parkinson's disease. Finding moments of normalcy and focusing on what brings joy can help balance these feelings.

Here are some positive ways to cope:
• Focus on activities that still bring you pleasure
• Share your feelings with others in the community who understand
• Take time to celebrate the good moments when they come
• Consider talking with a mental health professional who specializes in chronic conditions

August 17, 2025
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

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