Nursing homes are very expensive. How you pay for it is going to depend on your finances. Medicare doesn't cover nursing homes, except for short term post-hospital rehab. Long term care insurance does, but is expensive and needs to be purchased before you become sick. Medicaid pays for nursing homes, but you have to have limited income and assets. (Under $2000, at least in some states.) I think what many do is pay for the care as long as they can, then apply for Medicaid when there is nothing left. Spouses can keep some assets, like the house they live in, but most of the assets will end up being used to pay for care.

As to the emotional cost: that can be even harder. I think it comes down to doing what is best for both of you. If you are so exhausted it is affecting your health, both mental and physical, then you won't have what is needed to take care of your spouse. A good nursing home will have the staff to be able to give 24 hour care. You can spend time with your spouse, but then have some time to take care of yourself as well.

I haven't been there. I hope it doesn't come to that for my husband, but I know that the time may come when I don't have the strength or ability to care for him. I pray it doesn't, but it might.

My father, who also had PD, started out with a part-time aide at home. That worked for several years. He ended up in a nursing home, paid for by his long term care insurance. His wife more or less moved in with him, while keeping an outside apartment for when she needed a break.

I am sorry for your loss.

Thank you all for support. We have been threw a long physical and emotional few years together with this illness not much help or understanding. No blame cause most don.t understand about Pd. My husband was very private about his condition. We tried everything with Gods help. Had to put him in nursing home towards the end very emotional and expensive. He went to be with the Lord with me and our son and wife Loving grandchildren who cared by his side. The hurt and miss is there every day. But we know he is not suffering anymore. May you all look to God for strength and comfort as you go through this horrible disease.

Everything you wrote is correct. Basically Medicare and your social security benefits if they see that $2,000 a month you're going to pay. Medicare I think people do not understand is the ruler of all insurance companies. They require certain specific requirements on just about everything. Including like if you go to the ER and they put you in a observation room is actually the same room. If they admit you then you will not have to pay that extra 20%. The changes that are coming in 2026 I haven't reviewed them all but it appears they're trying very hard to push Medicare advantage out. The Medicare Gap is what they seem to be going for. With Nancy's Parkinson's and with Steve's multiple medical issues both of them will be in my care and our family kids Care for as long as we can do it.
I have made the decision and i have made Steven understand that my condition of hypertension has gone off the charts adding to the narcolepsy & the falls. We have found a facility the best description of it is a cruise ship on land ibeautiful. But it is expensive it's almost $4,000 a month. And that's okay. Here's the other twist you better have someone you trust that you can be the executor have power of attorney because if Medicare finds out you have any assets they're going to get it baby.