I would consult with his neurologist before stopping ANY PD medications. PERIOD

I worked with senior citizen care for over eight years. When people reached the hospice stage the national average was 4 days. for the period I was involved it turned out to be very true. A hard decision was always stopping or limiting medication.
The goal always was maximum comfort and side effects of medication can be difficult to measure.
may we all die in peace and love.

I was admitted to hospice, and was not expected to survive. I had lost weight, was not eating enough to even treat my diabetes, let alone use insulin, and mostly I was sleeping. I had also had a very serious hypertensive crisis and couldn’t tell if I was missing my morning meds, or my evening ones, despite having a machine. Now I cannot take the usual Parkinson’s meds, but I have MSA so the meds I take are different, but the meds which were stopped were not for my MSA treatment. If a person experiences feeling better when on PD meds it seems contraindicated to take him of the medication which keeps him comfortable. I would check and question if I was in your shoes. People have definitely gotten better after time in hospice no matter how sick they were going in. I would definitely want to know why before taking him off such an import drugs yr .
TeresaBaker

So sorry, Ginny. I can say that my only experience with hospice was with my late wife. She was actually in hospice longer than anyone expected. The dear people in hospice had one main goal—to keep her comfortable. They did that and helped her to enjoy the last times of her life as best as possible. I’m forever grateful for those dedicated people, especially her care nurse, who helped us enjoy our remaining time together.

My brother and sister both passed in hospice from cancer. Neither one was put in hospice longer than 3 days before passing. All their medication (cancer and non cancer related were stopped in hospice. Up to that point, in or out of the hospital, all their meds were maintained on schedule.
I am a care giver for my wife who has PD for the past 12 years. She suffered a stroke and lost the ability to walk, talk normally, and had vision problems for about 4 months. After trying everything offered, I took her to Jefferson Hospital in Philadelphia because of increasing hallucinations. We live in a rural area and just could not get any answers from her local Drs. They were great but we needed something more focused.
She was admitted and under the supervision of their Chief of neurosciences who met with me with a plan.
First, his team retested everything from our local records. She had 2 strokes in the same place months apart. They eliminated the strokes as the cause for what was happening based on position and lack of severity. Next, her team tested every single body system and could find nothing that would cause what she was experiencing. Next, they tracked every medication by purpose and results. All this happened across 4 (24 hour) days. My wife was worked with around the clock. The team met with us in the evening of the 4 the day. Their belief was that there was a negative drug interaction between one of her PD medication and one of her stroke medication. They recommended we allow them to cut both for 24 hours to see if there was any change.
I arrived at the hospital in the late afternoon after work. I found my wife digging up in a recliner. She smiled and said “watch” - she stood up and walked across the room to me. I was shocked. Her team and her Chief Dr. met with us that night.
By removing the stroke medication and one of her PD meds in less than 24 hours every negative issue was completely gone. I was assured it was not our local Drs as this drug interaction was specific to my wife’s chemistry and condition. On day 6, she was released. Monitored closely for three months, had both PT and OT. That was 2 years ago in February. I shared this because Dr’s follow a protocol which may not always be right for every case they address, Hospice was never considered. Taking a broad, multistage approach worked. Today, my wife is having normal PD issued. Her walking is great, she exercises several days a week with a PD trained coach, still has OT and PT.
My recommendation is, since you see your husband sitting up and doing well off his meds, maybe one or more of those meds is the issue. Hospice is for people ending their time with us.it dies not sound like that is the case for him. Try find, what I call, a Dr who only deals with PD and has the ability to dig into what is happening and how to best address you husbands needs. Gif bless you both and good luck!