Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 4, 2025
 · 
Reactions
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Have you consulted your insurance? If you have Medicare, you probably qualify for a companion program. I recently went into panic mode because my neurologist was gone. I felt like I was being passed around like hot potato! I called the Aetna Medicare Nurse, and she listened to all of my concerns, and referred me to a case manager who found a list of resources for me. To top everything off, the Neurology office where I thought would take 6 months to get into, suddenly had a cancelation, and could see me in less than 2 weeks!

October 5, 2025
A MyParkinsonsTeam Member

Kathleen it truly is unpredictable and the surprises are almost never pleasant. Parkinsons Devil1!!!!!

October 9, 2025
A MyParkinsonsTeam Member

Hi Donald, I get that when I stand still, check with your provider, it could be low blood psi.

December 24, 2025
A MyParkinsonsTeam Member

Some times when I stand up.

December 23, 2025
A MyParkinsonsTeam Member

So true

December 23, 2025

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Waycross, GA

A MyParkinsonsTeam Member asked a question 💭
Oceanside, NY

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In