@A MyParkinsonsTeam Member, Have you consulted your insurance? If you have Medicare, you probably qualify for a companion program. I recently went into panic mode because my neurologist was gone. I felt like I was being passed around like hot potato! I called the Aetna Medicare Nurse, and she listened to all of my concerns, and referred me to a case manager who found a list of resources for me. To top everything off, the Neurology office where I thought would take 6 months to get into, suddenly had a cancelation, and could see me in less than 2 weeks!
Kathleen it truly is unpredictable and the surprises are almost never pleasant. Parkinsons Devil1!!!!!
Hi Donald, I get that when I stand still, check with your provider, it could be low blood psi.
Some times when I stand up.
So true