Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Rocky Mountain west

Lately I have been experiencing Extreme dyskinesia, squirming & writhing uncontrollably
I have been on azelect, carb-levo & ropinirole for about 15 years. Over the first 8 years My neuro had gradually increased my C-L dose to 1 & 1/2 25-100 tablets 6 times a day. My ropinirole has always been high, at 2 mg 4 times a day. Now I find myself wanting to skip the last half of my daily doses
Dyskinesia is Not a PD symptom, but a side effect of the meds.
I have also been exercising less &… read more

November 12, 2025
 · 
Reactions
A MyParkinsonsTeam Member

Lose the Alcohol. Bad mix with PD meds1!!!

November 14, 2025
A MyParkinsonsTeam Member

Ha ha ha!! We just had that conversation 🤣 My doctor has a fit when he gets my results. I ask what my numbers were last time. Ahh excellent I am consistent. Both parents made it to their 90s. Of course there is the ol curb or sidewalk ya gotta watch! 🤔

November 15, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I agree with @A MyParkinsonsTeam Member. Seizures are a serious concern. I was having seizures for a while. I discovered that it was caused by a chemical interaction between Rytary and Atorvistatin. My Primary insisted that I needed some type of medication to reduce my cholesterol, so he prescribed one that wasn't supposed to cross the blood-brain barrier, but apparently it did because I started having problems again. I believe that my blood-brain barrier is damaged. The brain is made up of around 20% cholesterol. I think I'll keep my cholesterol, thank you very much!

November 14, 2025
A MyParkinsonsTeam Member

Love your response Melissa! I agree. If there is something medical that can be repaired, get it done in your younger age. You stand to gain a longer lifespan, than waiting until you old and not in such good shape.
Metaphorically speaking, I think PD just turned cart wheels! 🙂 I am having so much weakness and loss of balance, I started researching. It’s more of PD treatments for the various complications that cause ones demise.

November 16, 2025
A MyParkinsonsTeam Member

We're each unique, @A MyParkinsonsTeam Member! Parkinson's usually develops over the years because of various infections we've had, some of us have been exposed to one or another chemical or another. Some have had great deal of exposure to chemicals. Some started life with genetic anomalies. Since every Parkinson's case is built differently, the symptoms will consequently be different.

November 13, 2025

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Banora Point, AU

A MyParkinsonsTeam Member asked a question 💭
Ft. Lauderdale, FL

A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA