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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

For some reason during the hours of 2-4 pm my body does not want to move at all. I have to just lay down and wait until my meds kick in and they usually take forever I feel guilty for just lying around all that long and was wondering if you experienced the same problem. Bean

November 13, 2025
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Answer Summary

Members with Parkinson's disease related deeply to the 2-4 PM 'off time' struggle, with many sharing that napping, scrolling on their phones,... Read more

Members with Parkinson's disease related deeply to the 2-4 PM 'off time' struggle, with many sharing that napping, scrolling on their phones, listening to music, or simply resting are their go-to ways to get through it. Several members discussed medications like Rytary, carbidopa-levodopa, and Inbrija, with helpful tips about setting alarms for doses and finding assistance programs to manage high costs. A recurring theme was that guilt around resting is common, but the community offered reassurance that listening to your body and allowing yourself to rest is both necessary and valid.

A MyParkinsonsTeam Member

My uncle also had Parkinson's and found a true 90 minute sleep nap was very very helpful.
Now that I have Parkinson's this awkward period of the day made me do a tremendous amount of research. I discovered a tremendously understandable explanation.
The article was by a Neurological Parkinson's Psychiatrist comparing the brain strain of PD to the strain on an overworked computer. If you wake up and start doing research or playing with the computer it will overheat and have to be turned off for about an hour. As our brain also tends to overheat it also needs to be turned off with a 60-90 minute nap. As we sleep our stress level can return to almost a morning norm.
My productivity from wake up to nap is 70% but with the nap I wake with 40% for the rest of the day.. Main win for me is no longer a crash midday.

November 15, 2025
A MyParkinsonsTeam Member

Nap time

November 13, 2025
A MyParkinsonsTeam Member

I either sleep or get on phone where I can read whatever I find interesting, watch videos, or play games depending on how active my brain is.

November 13, 2025
A MyParkinsonsTeam Member

My off-time happens mostly after I work out in the morning. I can't easily do much during this time, other than crashing and taking a nap, which I do. I had DBS done in 2018, which pretty much eliminated my tremors. For medication, I take carbidopa-levodopa Extended Release (generic Rytary?). This costs me $20.00 for a 3-month supply. I also take a little carbidopa-levodopa Immediate Release, which gives me a quicker boost of dopamine. I pay $5.00 for a 3-month supply of this.

December 2, 2025
A MyParkinsonsTeam Member

I cannot tell a lie i smoke weed for my pain any input?

November 14, 2025

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