Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Lindenhurst, IL
November 13, 2025
 · 
Reactions
A MyParkinsonsTeam Member

Dbs is supposed to help with dyskensia not make it worse. It is supposed help with dystonia, tremor and off time. I had mine turned on Tuesday the 11th. I walked out of the doctor's office with my rollator and my cane. If someone is having dyskensia, you need to adjust your generator or program or cut back on your medication. See you movement disorder specialist. Something isn't right. I am completely overwhelmed by the results I have gotten. I'm already taking less medicine. No off time and no dyskensia. I am totally overwhelmed.

November 13, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - I think bilateral means what it says, both sides. Some people only have the implants on one side rather than on both. GPI is the region of the brain where the implants are placed, the Globus Pallidus Internus.

November 19, 2025
A MyParkinsonsTeam Member

DBS can also help rigidity, which can make a difference for balance and pain. I spoke with someone who had the surgery many years ago who never had external tremors, just internal and problems with extreme rigidity. DBS helped both.

November 13, 2025
A MyParkinsonsTeam Member

I have much worse dyskinesia since getting DBS. When I start getting off balance I know it's time to charge my device.

November 13, 2025
A MyParkinsonsTeam Member

My balance is worse since my dbs just over a year ago I had bilateral gpi

November 13, 2025

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Alabama