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How do you feel about the way Parkinson’s is portrayed in TV shows or movies?

MyParkinsonsTeam asked a question 💭
San Francisco, CA

What do you wish creators understood better?

February 12
 · 
Reactions

Answer Summary

Members shared their thoughts on how Parkinson's is portrayed in media, with a strong consensus that TV and movies barely scratch the surface... Read more

Members shared their thoughts on how Parkinson's is portrayed in media, with a strong consensus that TV and movies barely scratch the surface of what living with PD truly looks like. A recurring theme was the need for better representation of the disease's complexity, including the fact that symptoms vary widely from person to person, it affects far more than movement, and the enormous toll it takes on caregivers and family relationships. Several members praised the show Shrinking for its thoughtful portrayal, while others called for more awareness of invisible symptoms, medication side effects, and the emotional weight carried by both patients and their loved ones.

A MyParkinsonsTeam Member

I wish they would portray how hard it is for the one with parkinsons to lose their sense of self.And, how hard it is on the loved one/caretaker.

February 17
A MyParkinsonsTeam Member

Parkinson's is not only what people see on the outside.

February 18
A MyParkinsonsTeam Member

Recognise the fact everyone with Parkinson's is different.

February 14
A MyParkinsonsTeam Member

I feel we need all the publicity we can get, so any portrayal of a
Parkinson's person on TV is a benefit. The handful of times I saw Michael
J Fox in a production with his parkinson's It was done well and respec

February 21
A MyParkinsonsTeam Member

I really don’t see Parkinson's in movies etc at all. I have ADHD too but
don’t see it portrayed. Watch a ton of movies on Netflix etc. What am I
missing?

I’m so relieved now that I’m a new owner of a walker. Bought yesterday,
and I walked several kilometres enjoying the freedom. Not having to hold
my partner’s hand constantly to feel safe. Yay!

New in this supportive community and just learning how to navigate it as
well!

Hugz,
Visala

February 18

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