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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How do you afford long term care for a patient with PD when you can no longer care for them at home?

A MyParkinsonsTeam Member asked a question 💭
Plano, TX

I understand Medicare will not pay for long term care for PD patients. I am afraid we will lose all of our retirement money paying for his LT care. Any ideas, suggestions? He isn't ready to go to a facility just yet, but I am trying to figure out what to do when the need arises.

February 23
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MyParkinsonsTeam

How can you afford long-term care for someone with Parkinson's when home care is no longer possible?

Your concern about protecting retirement assets is completely valid and shared by many caregivers. Planning ahead now is actually one of the smartest things you can do.

First, consider consulting with an elder care lawyer Show Full Answer

How can you afford long-term care for someone with Parkinson's when home care is no longer possible?

Your concern about protecting retirement assets is completely valid and shared by many caregivers. Planning ahead now is actually one of the smartest things you can do.

First, consider consulting with an elder care lawyer as soon as possible. A MyParkinsonsTeam member shared that they almost lost everything because they didn't protect their assets early enough. An elder care lawyer can help you understand options for asset protection before long-term care becomes necessary.

For government assistance, look into these programs:

- Medicare: Covers some healthcare costs for those 65+ or with qualifying disabilities, though it has limited long-term care coverage
- Medicaid: May cover long-term care costs if you meet income and asset requirements (eligibility varies by state)
- VA benefits: If your loved one is a veteran, they may qualify for additional support

You might also explore combining multiple resources. One caregiver mentioned using VA benefits, hospice services, private caregivers, and family support to share the caregiving load and costs.

Consider talking with a social worker who specializes in Parkinson's care. They can help identify financial assistance programs, respite care options, and other resources you might not know about.

The key is addressing this proactively rather than waiting until a crisis hits. Getting legal and financial guidance now can help protect your retirement while ensuring your loved one receives proper care.

February 23
A MyParkinsonsTeam Member

We're in the same position: too much income for Medicaid, and no long term care insurance, so we will need to spend savings to pay for care. AI's suggestion about consulting an Elder Law attorney is a good one. They will know what the law is in your state. You should be able to keep your home and some portion of joint assets for your use, but most of your money will go to pay for nursing care.

February 23

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