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A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

After my medication wears off, I get awful muscle rigidity, numbness and weakness. As my next dose gradually crawls around my system, I get a few minutes of dyskinesia, mostly in my feet which get all restless and "twirly"...but then I get my couple of hours of "almost normal", so I quite enjoy the dyskinesia as a sort of "promise" of the good times to come.

Maybe I'm just weird?

March 18
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Rytary keeps me on a rather even keel. However, I do have times when there seems to be more energy going through my muscles than I have strength to manage. I guess that's "Dyskenesia." I don't mind it. I dance better now without trying than I ever could when I wanted to which was a looooooooong time ago.

March 18 (edited)
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member

Don't get me wrong...5 minutes of dyskinesia as a prelude to my hour or so of "on" time has it's charms; it's like an alarm clock that I don't have to remember to set.

Come back to me if it starts to be 90 minutes of dyskinesia and 5 minutes of on time, and I'm sure I'll be singing a different tune.

As to the faithful; go easy on them; they have no more control over putting God into every post than I do over my muscle rigidity. It is what I both ridicule and envy about them.

Religion...no, scratch that...belief...is not a choice. They feel it, I don't. They MAY lose faith over things that happen to them, but I'm pretty sure nothing I could say could break it. Similarly they cannot do anything about my lack of faith; but life, some event in the future, could sway me.

But I don't want...no...WILL NOT be forced into faith by fear alone. Those truly religious zealots who interpret a dying atheist's final "oh god" utterance as a heartfelt prayer are not seeing faith; they are seeing fear.

I haven't seen any of the "You better find Jesus and soon" posts (normally in all capitals, which I will not reproduce here) for a good while. To be fair the fact that there were never many here in the first place is part of why I've stayed on MPT for so long. I think my....forthright...responses to the more persistent few have taught them that if they're after a battle of wills and wits, they'd better bring bigger guns...but I'm happy to be included in any prayers, to any of the 3,000 or so Gods that have claimed sway in the history of human (and probably, pre-human civilisation).

After all, I can't prove that ALL of them are wrong; I might get lucky!

March 23
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, talk to your doctor. You might be surprised,

March 18
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member The sinemet used to, for me, but I reckon I've had this for 16 years (6 undiagnosed, 10 diagnosed) and I think I'm at the point where there's not a lot that can help me for much longer.

Parkinson's; a rubbish story, with lots of twists and turns...but the ending is always the same.

March 18
A MyParkinsonsTeam Member

Hi AnneKristine,
I respect your comments. It’s not my intention to cause any animosity. I was speaking about myself, making comments about me and my beliefs. If I offended you or anyone else, I truly apologize.

March 22

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