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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What to do when doctors give up on you

A MyParkinsonsTeam Member asked a question 💭
Honolulu, HI
April 3
 · 
Reactions
A MyParkinsonsTeam Member

Find another dr va will pay for it I know

April 4
A MyParkinsonsTeam Member

thank you i am working on moving i own my home hard to take care of it

April 11
MyParkinsonsTeam

What should you do when you feel your doctor has given up on you?

It's understandable to feel frustrated or abandoned when your medical care doesn't feel supportive. Here are some steps you can take:

Consider finding a new doctor who specializes in Parkinson's

Not all neurologists have the same expertise with Parkinson's Show Full Answer

What should you do when you feel your doctor has given up on you?

It's understandable to feel frustrated or abandoned when your medical care doesn't feel supportive. Here are some steps you can take:

Consider finding a new doctor who specializes in Parkinson's

Not all neurologists have the same expertise with Parkinson's disease. A MyParkinsonsTeam member shared: "All neurologists are perhaps good in the treatment of one disease but not necessarily with Parkinson's." Look for a movement disorder specialist who focuses specifically on Parkinson's care.

Get a second opinion

This is a common and respected practice. Any reputable doctor won't be offended by this request and may even provide additional suggestions for specialists.

Ask your support network for recommendations

If you attend a Parkinson's support group, ask other members which doctors they recommend. Personal experiences from others living with Parkinson's can be invaluable.

Look for a team approach to care

The best Parkinson's care often involves multiple specialists working together - including physical therapists, speech therapists, occupational therapists, and mental health professionals. Ask potential doctors if they can connect you with these resources.

Remember, Parkinson's care is a long-term partnership. You deserve a doctor who listens carefully, answers your questions, and makes you feel comfortable discussing your concerns. It's your life, your body, and your trust - do what's best for you.

April 3
A MyParkinsonsTeam Member

well if you know va no choice plus i live on island not too maney choice i have to travel to oahu to seemy doctor with means airport hard when in wheelchair

April 4
A MyParkinsonsTeam Member

thank you for your concern butmy va coverage all i have my doctor told me not to bother tem with my new pd problums so i tested them so recently i lost feeling in my legs i informed them thay chose to do nothing egnore the problum wen i was on hmsa i also had more doctors but if you have va cut of hmsa

April 4

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