Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone suffer with tremors which are inside their head? I’ve asked people if my head is shaking and they’ve said no, but it feels like

A MyParkinsonsTeam Member asked a question 💭
England uk

I was diagnosed by that Datscan and various other tests I’ve had a couple of falls before and people were noticing my speech had got a lot slower. I am on C./l medication today I’m attending a memory assessment as I keep forgetting things or where I’ve put things or just general forgetting does anyone else suffer with this and also inside tremors which no one sees on the outside

May 6
 · 
Reactions
A MyParkinsonsTeam Member

I feel like that too. I feel like my head is bouncing and my neck hurts because of it. My Dr put me on a muscle relaxer because my nurse felt my neck and could feel the spasms but said my head wasn't bouncing like I thought it was.
I have a great but small group of friends and we all love to set around and laugh. It truly is the best medicine.

May 7
A MyParkinsonsTeam Member

The internal tremors shut me down!! I can't think, act or honestly care about anything but them stopping .... which thank God right now usually only last for an hour at a time but has increased to at least twice a day!!! I call this time "I have no function in my junction" which leads to me laughing as I try to sing that silly educational commercial as a kid incorrectly of course ... gotta laugh with all this pain, it's my main medicine!!! I pray for all of us but especially you today 🙏 (((HUGS)))

May 7
MyParkinsonsTeam

What you're describing — feeling tremors internally that others can't see — is something other MyParkinsonsTeam members have reported too. You are definitely not alone in this experience.

Parkinson's tremors are most noticeable when the affected body part is at rest, and they can affect areas like the head, jaw, lips, and Show Full Answer

What you're describing — feeling tremors internally that others can't see — is something other MyParkinsonsTeam members have reported too. You are definitely not alone in this experience.

Parkinson's tremors are most noticeable when the affected body part is at rest, and they can affect areas like the head, jaw, lips, and torso — not just the hands. Sometimes these sensations can feel very real internally without being visible externally. It's great that you're attending a memory assessment today — that's a really positive and proactive step. Memory and cognitive changes can be part of living with Parkinson's, so getting assessed is exactly the right thing to do.

A few things worth discussing with your medical team:

- Internal tremor sensations — describe exactly what you feel and when
- Your falls history — balance and movement changes are important to monitor
- Speech changes — slower speech is a known symptom worth tracking
- Memory concerns — your assessment today is a great starting point

Your carbidopa/levodopa (C/L) medication helps manage dopamine levels in the brain, which affects movement and tremors. Your neurologist may want to review your dosage based on how your symptoms are progressing.

Keep notes before your appointments — it really helps your care team get the full picture!

May 6

Related Questions

View All

Inside shakes

A MyParkinsonsTeam Member asked a question 💭
Kansas City, MO
February 7, 2019

Scientists Trace Link Between Head Injuries and Parkinson's
Parkinson’s Tremors: Causes, Types, and Treatments
Are People With Parkinson’s Eligible for Moderna and Johnson & Johnson Booster Shots?