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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sorry for myself. Because of my lightheadedness I am so limited with what I can do. And it makes me both sad and mad. This OH. Is killing me. I’m trying to be strong and accept what I can’t control. But this has to be the biggest battle I’ve ever faced. I’m so lucky I have support. I hope everyone fighting this debilitating disease has support. This group is a part of my support. Thank you so much to all of you. You make things better ❤️‍🩹

May 16
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Reactions
A MyParkinsonsTeam Member

I can relate!

May 19
A MyParkinsonsTeam Member

Thanks Michael. I’m an emotional person for sure. Was crying watching a movie last night. 😢

May 19
A MyParkinsonsTeam Member

Hi @A MyParkinsonsTeam Member I completely agree with you ! I have had many challenges and having PD is life altering. Like you, I’m mad, sad, frustrated and angry. I am deeply grateful for this site and the wonderful people here.

By the way, I am also a very emotional person. I am a Highly Sensitive Person HSP. You might check it out. For years, I knew that I was different and now knowing that I am a HSP, I am happy about that. For years, I tried to not be so sensitive. Now, I embrace that I am.

I cry at touching commercials lol.

May 19
A MyParkinsonsTeam Member

Roseann, You must fight with every resource available to you. exercise, PT, getting the proper meds. Do not allow this Parkinsons Devil to win.!!!!

May 17
MyParkinsonsTeam

First, those feelings are completely valid. Crying, feeling sad, feeling mad — that's not weakness, that's being human. Living with Parkinson's and orthostatic hypotension (OH) is genuinely hard, and some days the weight of it all just lands differently. You don't have to be strong every single day.

Many MyParkinsonsTeam Show Full Answer

First, those feelings are completely valid. Crying, feeling sad, feeling mad — that's not weakness, that's being human. Living with Parkinson's and orthostatic hypotension (OH) is genuinely hard, and some days the weight of it all just lands differently. You don't have to be strong every single day.

Many MyParkinsonsTeam members have shared similar moments of grief and frustration, especially when physical limitations steal what should be a good day. You are absolutely not alone in this. Something that has helped others in tough moments is practicing a little self-compassion. It sounds simple but it's powerful. Try:

- Placing a hand on your chest, like a comforting gesture to yourself
- Acknowledging out loud: *"This is really hard right now"*
- Taking a few slow, deeper breaths
- Reminding yourself that others truly understand this struggle

The fact that you recognize your support system — and that you're part of someone else's — says so much about your strength, even on the hard days. That heart you shared? It goes both ways. 💙

May 16

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