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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 26
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MyParkinsonsTeam

Arm stiffness and rigidity that isn't fully controlled by carbidopa/levodopa is a common frustration. There are a few avenues worth exploring with your neurologist.

Medication Adjustments
Your doctor may consider tweaking your current regimen in several ways:

- Adjusting the timing or dosage of your carbidopa/levodopa
- Show Full Answer

Arm stiffness and rigidity that isn't fully controlled by carbidopa/levodopa is a common frustration. There are a few avenues worth exploring with your neurologist.

Medication Adjustments
Your doctor may consider tweaking your current regimen in several ways:

- Adjusting the timing or dosage of your carbidopa/levodopa
- Switching to an extended-release formulation (like Rytary or Crexont) for more consistent coverage
- Adding anticholinergic medications like trihexyphenidyl, which can specifically help with rigidity and stiffness
- Adding a dopamine agonist to better mimic dopamine in the brain
- Using COMT inhibitors (like entacapone) to extend the effect of each levodopa dose Exercise and Movement
Regular movement can make a real difference for stiffness. Consider:

- Stretching routines targeting the arm and shoulder
- Strength or resistance exercises (with doctor's clearance first)
- Warming up before exercise and stretching afterward
- Aiming for at least 3 sessions per week

Other Options
If medications and exercise aren't enough, your neurologist might discuss deeper interventions like deep brain stimulation, which can help with rigidity beyond what medication alone achieves.

It's really worth keeping a symptom diary — noting when stiffness is worst relative to your doses — so your neurologist can fine-tune your treatment plan more precisely.

May 26
A MyParkinsonsTeam Member

The problem is, @A MyParkinsonsTeam Member, I've barely had her for a year, and it took me so long to get in to see her. There are so few decent doctors especially "in network." I don't have the luxury of of being picky. The lie she's accusing me of is irrelevant anyway. If I can prove my point, I can report her. We'll see how this goes.

May 26
A MyParkinsonsTeam Member

I can’t believe your doctor would say you were lying. Time for a new doc.

May 26
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I would first question if there might have been a misdiagnosis. Has your doctor given any suggestions? Maybe physiological therapy might help. Rytary is helping me in many ways, but my left leg started bothering me. I have had problems with my right leg all my life. All my neurologists have agreed that my right side is mostly affected by Parkinson's, but ever since December of 25, I have had more difficulties with my left leg than I ever had with my right leg: more pain, and less mobility. I talked to my Primary first because it feels different from my Parkinson's symptoms. They sent me to imaging, but nothing bad. I tried to discuss it with my neurologist, but it turned into her accusing me of lying. I'm frustrated. I hope you find answers to your questions.

May 26

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Banora Point, AU