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A MyParkinsonsTeam Member asked a question 💭
Chicago, IL

I’ve had extreme fatigue for over a week. It’s very depressing not being able to get up and wanna do things or it’s so hard to get up and do things it’s hard to motivate oneself. Does anybody else have problems or can they make suggestions as to how to get through this.

June 10
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MyParkinsonsTeam

Extreme fatigue is one of the most common and challenging parts of living with Parkinson's — so know that you are absolutely not alone in this. A MyParkinsonsTeam member once shared, "I'm always fatigued. Before Parkinson's disease, I worked full time... Now, I am too tired to do most anything." That feeling of being Show Full Answer

Extreme fatigue is one of the most common and challenging parts of living with Parkinson's — so know that you are absolutely not alone in this. A MyParkinsonsTeam member once shared, "I'm always fatigued. Before Parkinson's disease, I worked full time... Now, I am too tired to do most anything." That feeling of being trapped by exhaustion is something many people with Parkinson's deeply understand.

Fatigue affects up to 80% of people with Parkinson's at some point. It can be physical, mental, or both — and it doesn't always improve with rest, which makes it especially frustrating. Here are some practical strategies that may help manage Parkinson's-related fatigue:

- Plan around your energy — Identify the times of day when you feel most alert and schedule important tasks then. Rest when you know you'll need it most.
- Take short, regular breaks — Pacing yourself throughout the day can prevent burning out early.
- Get moving gently — It sounds counterintuitive, but light exercise like walking or yoga can actually boost energy levels. Start slow — even a short walk counts.
- Avoid alcohol — Even though it may feel relaxing, alcohol disrupts sleep quality and can leave you feeling more drained the next day.
- Talk to your doctor about medications — Some Parkinson's medications can contribute to fatigue. A doctor may be able to adjust doses or explore options like rasagiline, which some research suggests may help reduce fatigue.
- Address your mental health — Fatigue and low mood often go hand in hand with Parkinson's. Speaking to your doctor about screening for depression and anxiety is worth considering, as treating these can also ease fatigue. Since this fatigue has been extreme and ongoing for over a week, it's a good idea to bring it up with your doctor soon. They can help figure out whether it's related to your Parkinson's progression, a medication side effect, sleep issues, or something else — and work with you on a plan.

Hang in there. Many people with Parkinson's find ways to push through the tough days, even if it's one small step at a time. 💙

June 10

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