FYI. If you call the Parkinson’s Foundation, they will send you an advocate kit (free of charge) with a very nice bag to hold all of the things you are going to bring to the hospital stay or on dr. Visits. It reminds medical personnel that you need your meds ON TIME EXACTLY and several other extremely useful bits of info.
July 13
Living with Parkinson's for over 27 years is no small thing — that takes real strength and resilience. Your frustration about the pace of research is completely understandable.
The short answer is: no, researchers have not given up on finding a cure. The pursuit of a cure is very much ongoing. However, finding a cure for a Show Full Answer
Living with Parkinson's for over 27 years is no small thing — that takes real strength and resilience. Your frustration about the pace of research is completely understandable.
The short answer is: no, researchers have not given up on finding a cure. The pursuit of a cure is very much ongoing. However, finding a cure for a complex neurological condition takes an enormous amount of time, funding, and clinical trials. Here's what has been happening on the research front:
- Genetic research — Since the 1990s, scientists have identified several genes linked to Parkinson's development, opening new doors for targeted treatments
- DBS advancements — What was new when you were diagnosed has now become a well-established treatment that helps many people manage movement symptoms
- Stem cell research — Experiments transplanting stem cells to produce dopamine have shown promise, with clinical trials currently underway to test safety and effectiveness
The focus on symptom management isn't a retreat from finding a cure — it's about improving quality of life *while* the deeper research continues. Both tracks are running simultaneously.
Talking to your neurologist about current clinical trials could be a worthwhile conversation, especially given your long history with the condition.
July 13