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@A MyParkinsonsTeam Member, There are a lot irritating quirks in this website. If I didn't love MyParkinsonsTeam members so much, I would have nothing to do with a crazy site that won't let us share contact information if we want to and makes messages disappear suddenly and changes pages suddenly and won't let you go back to where you were. I can rarely find anything on this website.
It is the most difficult support group to navigate compared to my other disease sites
I just log in a couple of times a day and go down the list of all posts. You can also go only to people on your team by going to the Activity section and clicking on Team. I have notifications set so that I only get team requests rather than all the posts from all the people on my team.
I have found that this is one of the best website for Parkinsons disease , it's not perfect but at least there is no " I call it catfishing here , you know people trying to take advantage of you because your of sickness . Let's all hang in there and keep praying 🙏 and fighting this disease together , and GOD will do the rest
It's wonderful that you want to be there for others right away — that kind of support means so much! The delay in emails is actually a known quirk of the system. After changing your notification settings, it can take a few days for the updates to fully kick in. In the meantime, here's how to check notifications more Show Full Answer
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