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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 9
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A MyParkinsonsTeam Member

Check often for cancellation. You may get lucky.

August 13
A MyParkinsonsTeam Member

Yes, some people with Parkinson’s or Parkinsonism experience large blood-pressure fluctuations and syncope, but repeated fainting needs prompt medical evaluation.

Syncope means the brain temporarily is not receiving enough blood flow, but there are several possible reasons. These include orthostatic hypotension, neurogenic orthostatic hypotension, dehydration, medication effects, abnormal heart rhythms, and other heart or neurological conditions. POTS is another possibility, but it should not be assumed without testing.

Your neurologist may recommend lying and standing blood-pressure measurements, a heart evaluation, a tilt-table test, or other autonomic testing. Until you are evaluated, take the risk of falling seriously and do not drive if the fainting is unpredictable. Seek emergency help if an episode occurs with chest pain, an irregular heartbeat, severe breathlessness, new weakness, confusion, an injury, or during physical exertion.

Please talk with your neurologist about this as soon as possible. Your neurologist knows your medical history and can help guide you to the appropriate cardiologist, autonomic neurologist, or testing center. Finding the cause is important because the correct treatment depends on what is producing the blood-pressure changes and syncope.

August 12
A MyParkinsonsTeam Member

I know some people that suffer from Potts. I think it is something like positional orthostatic hypotension. When you move from different positions like lying to sitting to standing. Your heart does not compensate correctly. An autonomic neurologist may be helpful. A tilt table test can confirm it. Ask your doctor, that is just my opinion

August 9
A MyParkinsonsTeam Member

Glad you are seeing a doctor tomorrow. I have orthostatic hypotension. According to my pcp bp fluctuation is common with a person with pd. Pd can cause issues with the autonomic nerve system. Good luck tomorrow.

August 9
A MyParkinsonsTeam Member

It runs really high and drops really low throughout the day . Seeing a Dr tomorrow

August 9

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