Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I've had parkinson 5yrs I'm the first one who's ever had in my family my nervous system no longer sends signals to my brain.they give me medication to increase my dopamine.people say to you,it doesn't look like your sick,I thought Parkinson's was you shaking hands,I it's changed my whole life. I'm still have trouble accepting it. I leave it to God,only he knows what my future holds.i was angry with God ,but I've told myself,who am so to question my Creator.Im taking my illness a little more… read more

August 26
 · 
Reactions
MyParkinsonsTeam

What you're experiencing — freezing while turning, needing to hold walls, and feeling stuck — is something many people with Parkinson's go through. You are absolutely not alone in this. Freezing of gait is a recognized Parkinson's symptom, and turning is one of the hardest movements it affects.

Other MyParkinsonsTeam Show Full Answer

What you're experiencing — freezing while turning, needing to hold walls, and feeling stuck — is something many people with Parkinson's go through. You are absolutely not alone in this. Freezing of gait is a recognized Parkinson's symptom, and turning is one of the hardest movements it affects.

Other MyParkinsonsTeam members have shared similar feelings. One member wrote, "It feels like the earth is moving under my feet." Another said simply, "A good day is one without falls."

And that comment about "you don't look sick"? That's one of the most common frustrations members share. Parkinson's is so much more than tremors — it affects movement, balance, energy, and daily life in ways that aren't always visible to others. There are some practical strategies that may help with freezing and turning:

- Use a "U-turn" strategy — walk in a curved path instead of pivoting suddenly
- Lift your feet intentionally and imagine stepping over a line
- Walk to a steady beat — music or a metronome can really help
- Focus on one task at a time while moving
- Consider a walker or cane — one member said their falls decreased significantly after accepting one

It's worth talking openly with your doctor about how much this has progressed. They may adjust medications or refer you to a physical therapist who specializes in Parkinson's. As for acceptance — that struggle is real and deeply human. A MyParkinsonsTeam member once wrote that after diagnosis, they rejected the idea that life was over and chose instead to face each challenge as it came. That takes time, and 5 years in, with progression happening, it makes complete sense to still be working through it.

At 66, feeling like 86 some days is valid — but those harder days don't define every day ahead. 💙

August 26
A MyParkinsonsTeam Member

Those are some great tips for FOG!

August 30
A MyParkinsonsTeam Member

Sandra, yes, many people with Parkinson’s have trouble turning and experience exactly what you described. It is called *freezing of gait*. Your mind tells your feet to move, but they feel glued to the floor. Turning, doorways, narrow spaces, stress, and trying to do two things at once can trigger it.

I know how frightening it must be when you become stuck and have to call someone for help. This is a real Parkinson’s symptom. You are not imagining it, and you are not doing anything wrong.

When your feet freeze, try not to fight harder or twist your upper body while your feet remain planted. That could make you fall. Instead, remember four words:

*Stop:* Stop forcing your feet to move.
*Sigh:* Take a breath and stand tall if you safely can.
*Shift:* Gently move your weight from one foot to the other.
*Step:* Take one slow, exaggerated step.

Counting “one, two, three, step,” marching in place, humming a rhythm, or imagining a line on the floor and stepping over it may also help. Different cues work for different people.

When turning, avoid pivoting in place. Make a wide half-circle with several deliberate steps, as though you are walking around the edge of a large dinner plate. Lead with your foot instead of twisting your upper body first. Please have someone nearby when you practice.

Because you are holding onto walls, becoming completely stuck, and sometimes needing help, please contact your neurologist promptly. Explain that your freezing and difficulty turning have worsened during the past six months. Notice whether it happens more often before your next medication dose, because freezing can sometimes be part of an OFF period. Your neurologist may need to review your medication timing or treatment plan. Do not change medication yourself.

Ask for a physical therapist who works with Parkinson’s. A therapist can teach safe turning and cueing methods and determine whether a cane, walker, or laser-cueing device would be safer than holding onto the wall. An occupational therapist can also recommend grab bars, better lighting, and other home-safety changes.

I understand how hurtful it is when people say, “You don’t look sick.” Many people think Parkinson’s only means shaking hands. They do not see the freezing, stiffness, exhaustion, balance problems, anxiety, or tremendous effort ordinary activities may require. What you are experiencing is real, even when others cannot see it.

Your faith can give you strength, and asking for help is also a form of strength. You are not questioning God by accepting help from doctors, therapists, family, or friends.

Please ask your neurologist for a prompt evaluation and a Parkinson’s-trained physical-therapy referral. You may also call the Parkinson’s Foundation Helpline at (Phone number can only be seen by the question and answer creators)* for help locating resources near Fort Worth.

August 29
A MyParkinsonsTeam Member

Thanks I l for sharing that information

August 27
A MyParkinsonsTeam Member

There's tricks to help with walking. You have FOG, freezing of gait. Go to the internet and look.it up. It's my worst symptom. Good. Luck to you.

August 27

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Mesa, AZ

A MyParkinsonsTeam Member asked a question 💭
Idahp Falls, Idaho

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In