Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I've had parkinson 5yrs I'm the first one who's ever had in my family my nervous system no longer sends signals to my brain.they give me medication to increase my dopamine.people say to you,it doesn't look like your sick,I thought Parkinson's was you shaking hands,I it's changed my whole life. I'm still have trouble accepting it. I leave it to God,only he knows what my future holds.i was angry with God ,but I've told myself,who am so to question my Creator.Im taking my illness a little more… read more

August 26
 · 
Reactions
MyParkinsonsTeam

What you're experiencing — freezing while turning, needing to hold walls, and feeling stuck — is something many people with Parkinson's go through. You are absolutely not alone in this. Freezing of gait is a recognized Parkinson's symptom, and turning is one of the hardest movements it affects.

Other MyParkinsonsTeam members Show Full Answer

What you're experiencing — freezing while turning, needing to hold walls, and feeling stuck — is something many people with Parkinson's go through. You are absolutely not alone in this. Freezing of gait is a recognized Parkinson's symptom, and turning is one of the hardest movements it affects.

Other MyParkinsonsTeam members have shared similar feelings. One member wrote, "It feels like the earth is moving under my feet." Another said simply, "A good day is one without falls."

And that comment about "you don't look sick"? That's one of the most common frustrations members share. Parkinson's is so much more than tremors — it affects movement, balance, energy, and daily life in ways that aren't always visible to others. There are some practical strategies that may help with freezing and turning:

- Use a "U-turn" strategy — walk in a curved path instead of pivoting suddenly
- Lift your feet intentionally and imagine stepping over a line
- Walk to a steady beat — music or a metronome can really help
- Focus on one task at a time while moving
- Consider a walker or cane — one member said their falls decreased significantly after accepting one

It's worth talking openly with your doctor about how much this has progressed. They may adjust medications or refer you to a physical therapist who specializes in Parkinson's. As for acceptance — that struggle is real and deeply human. A MyParkinsonsTeam member once wrote that after diagnosis, they rejected the idea that life was over and chose instead to face each challenge as it came. That takes time, and 5 years in, with progression happening, it makes complete sense to still be working through it.

At 66, feeling like 86 some days is valid — but those harder days don't define every day ahead. 💙

August 26
A MyParkinsonsTeam Member

Those are some great tips for FOG!

August 30
A MyParkinsonsTeam Member

Thanks I l for sharing that information

August 27
A MyParkinsonsTeam Member

There's tricks to help with walking. You have FOG, freezing of gait. Go to the internet and look.it up. It's my worst symptom. Good. Luck to you.

August 27
A MyParkinsonsTeam Member

Oh, Sandra you could be writing my story too! I am 65 and had Parkinsons for 5 years. I was just saying that I am 65 but feel like 85. I have questioned God sometimes. Even after 5 years I still have a hard time accepting the fact that I have Parkinsons. The fatigue has gotten so bad the last few months. I sleep 12 to 14 hours a night. I might need my Carbidopa/Levidopa increased again. I don't have any freezing yet but I have heard that humming has helped some people to avoid freezing while walking. Best wishes Cheryl

August 26

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Mesa, AZ

A MyParkinsonsTeam Member asked a question 💭
Idahp Falls, Idaho