If I just get out for something like a hair appt & then Bible study in the same day, I find myself in bed the next day. I am grateful for the day ai got out but sad the day I am in bed.
Answer Summary
Members connected over the very relatable experience of 'paying for' a good day out with exhaustion and bed rest the next day, confirming this... Read more
Cindy A4 ,
I think you and most of us experience that feeling know we all have that happened to us . I'm getting ready for the move to Michigan and I had to clean out a large shed during 100 degree weather this week . I did it on Wednesday and I'm still in pain from cleaning it out and today is Friday , but I always look at it this way , our Savior Jesus Christ suffered more pain than anybody else could experience just to save us from our sins . And I still have to clean out the other house and get the rest of this house packed up and ready for the move . Not too mention it I will be driving the U-haul to Michigan by myself with a dog and cat in the cab with me , and towing the Charger on a trailer behind the U-haul for 8 hours or more because you can't drive more than 55 miles and hour , but I know God will be with me every step of the way , it might take 2 days to get there but we will get there when we get there . My point is do whatever you need or want to do and just know that everything we do has a price for what we need to get done . So relish the good days and rest when you need to , because we have to fight this disease one day at a time , keep praying 🙏 and fighting .... 🤍
My saying is "WOW, I had great day, I'm gonna pay for this" and I do but at least there are still some good days!!!
My husband experienced this after he comes home from his appointments and church .He is so tired and exhausted.
My husband w/PD also experiences this. He's feeling good one day and horrible the next. We have found he can only have 1 appt per day or he's exhausted.đź©·
Praying more good days to come.
It’s difficult to balance changes in energy. I have trouble determining how to pace myself. Prioritizing tasks is a helpful strategy.