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A MyParkinsonsTeam Member asked a question đź’­

If I just get out for something like a hair appt & then Bible study in the same day, I find myself in bed the next day. I am grateful for the day ai got out but sad the day I am in bed.

September 10
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Answer Summary

Members connected over the very relatable experience of 'paying for' a good day out with exhaustion and bed rest the next day, confirming this... Read more

Members connected over the very relatable experience of 'paying for' a good day out with exhaustion and bed rest the next day, confirming this is a common part of living with Parkinson's disease. Several members shared practical strategies like limiting themselves to one appointment per week, pacing activities carefully, and prioritizing what matters most, such as church or family events. A recurring theme was finding emotional strength through faith, gratitude for the good days, and encouraging one another to rest without guilt while continuing to fight the disease one day at a time.

A MyParkinsonsTeam Member

Cindy A4 ,
I think you and most of us experience that feeling know we all have that happened to us . I'm getting ready for the move to Michigan and I had to clean out a large shed during 100 degree weather this week . I did it on Wednesday and I'm still in pain from cleaning it out and today is Friday , but I always look at it this way , our Savior Jesus Christ suffered more pain than anybody else could experience just to save us from our sins . And I still have to clean out the other house and get the rest of this house packed up and ready for the move . Not too mention it I will be driving the U-haul to Michigan by myself with a dog and cat in the cab with me , and towing the Charger on a trailer behind the U-haul for 8 hours or more because you can't drive more than 55 miles and hour , but I know God will be with me every step of the way , it might take 2 days to get there but we will get there when we get there . My point is do whatever you need or want to do and just know that everything we do has a price for what we need to get done . So relish the good days and rest when you need to , because we have to fight this disease one day at a time , keep praying 🙏 and fighting .... 🤍

September 11
A MyParkinsonsTeam Member

My saying is "WOW, I had great day, I'm gonna pay for this" and I do but at least there are still some good days!!!

September 10
A MyParkinsonsTeam Member

My husband experienced this after he comes home from his appointments and church .He is so tired and exhausted.

September 13
A MyParkinsonsTeam Member

My husband w/PD also experiences this. He's feeling good one day and horrible the next. We have found he can only have 1 appt per day or he's exhausted.đź©·
Praying more good days to come.

September 13
A MyParkinsonsTeam Member

It’s difficult to balance changes in energy. I have trouble determining how to pace myself. Prioritizing tasks is a helpful strategy.

September 12

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