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He’s in long term care due to falls. Diagnosed in sept 2023. In care facility November 23. First was in rehab but they did nothing. Walked him a few times. Why? I was in no state to ask questions. I was freaking out. Today he slept all day. Every day gets scarier. I’d trade places any day but I wouldn’t want him doing what I’ve been doing either. I just want him to be happy and healthy but he can’t. What do I do
I don’t know what the channels are where you’re at but I would start with the social worker in the facility and see if you can request a care conference. This will bring together all the dept heads and facility Doctor or NP and they will go over their plan of care for your husband. And at that time you as well can voice any concerns you may have and they can adjust his care plan if they feel he is able to safely do what your thinking he should. But there is no reason why he is in bed all day at the bare minimum he should be up for a period in a wheelchair or if they have it a recliner. Last thing he needs is bed sores. Good luck you and your hubby will be in my thoughts and prayers!!!❤️❤️
What you're feeling — the fear, the helplessness, the love — is completely valid. You are still very much his caregiver, even from outside those facility walls. Being in a care facility doesn't mean your role ends. It just changes shape.
Here are some meaningful ways you can still support him:
- Advocate at every visit — ask Show Full Answer
So sorry for what you and your husband are going through . I had my husband in a rehab/ assisted care facility. He was so unhappy. I woke up in the morning and went to be with him everyday. I didn't think it was so bad but I understand that he only wanted to be home.
Your circumstances are not allowing you to do that but you are living with him and that is so loving of you. It's way to hard to try and keep him happy and not really your responsibility
Maybe some music that you both listened to
Take care of you Cindy
Lots of prayers and hugs to you both 🩷
I don't know what the laws are now, especially since you're in Wisconsin, and I'm here in Missouri, neither do I know any particulars of your situation, but when my great grandfather was in a nursing home and they weren't taking good enough care, Grandma Amy brought him back home. I was 8, so this was 59 years ago. It's a different world now, but I don't think that home health care even existed then. I don't know what to tell you, but @A MyParkinsonsTeam Member and I will be praying for the both of you.
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