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3 days ago
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Answer Summary

Members rallied around someone experiencing intense shaking for two days, sharing both practical tips and emotional support while encouraging... Read more

Members rallied around someone experiencing intense shaking for two days, sharing both practical tips and emotional support while encouraging them to keep calling their doctor. Several members pointed to medication timing and dosage as key factors, noting that avoiding heavy proteins around carbidopa levodopa and managing constipation can greatly affect how well the medication works. A recurring theme was that colder weather can worsen tremors, and members also suggested exploring a Movement Disorder Clinic, trying a nicotine patch, and watching the YouTube show 'Doing Life Today' for helpful Parkinson's resources.

A MyParkinsonsTeam Member

Peggy - are you sure that you are taking your carb/lev properly? Don’t eat heavy proteins for 60 minutes after your meds or don’t take your meds until 120:min after your heavy protein intake. Also, make sure that you have constipation (if any) under control. A blocked intestine can seriously affect how your body absorbs your carb/lev. Any of the above conditions can reduce or totally nullify your medication. Also, do not be afraid to research other Neurologists. You should not tolerate being ignored or slow responses. The docs are busy but they all have assistants and staffs. Find and try a different doctor.

3 days ago
A MyParkinsonsTeam Member

I’m sorry to hear please retry dr

3 days ago
A MyParkinsonsTeam Member

Peggypierson,
When my tremor is up, I take an extra lev/carbidopa pill. It usually brings it under control. But the best advice is to keep calling the Dr. office until they respond.

Knowing more information could help us help you. What meds are you taking? Are you experiencing more stress than normal? How are you sleeping? Are you eating things (or more of things) not normally in your diet? Are you exercising? I have found in the few years of having PD, there are many triggers that level up my tremors.

Darren

3 days ago
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member
I’m sorry you are having tremors so bad Peggy. Internal tremors are miserable and the outer tremors are not much better. Are you eating a banana before or after your meds? Sounds silly but there is a part on the show I wrote about below that is titled
“Who Knew” and that was one of the things he talked about. I can’t remember the other things that are off the wall that I didn’t know about. If I remember I’ll message you. Also my MDS says she can give me a pill that might help my tremors. I said no because I take so many pills. My 12 PD pills plus other pills for other health issues. When I see her next I am going to tell her I want to try. It. My tremors have increased so I need to try it. My regular Neurologist saw me and said I could take part of my Clonozepam that it would help. I take 2 mg at night for REM Sleep Behavior Disorder so he said to try a piece of it.

You must be exhausted. They can exhaust you. Please call your doctor again. I know you are just miserable which makes you stressed which makes the tremors stronger.
I watch “Doing Life Today” with Bryce Perry and it has given me information I never knew. He has had PD since age 40 and was or is a Motivational Speaker. He stays on top of everything Parkinson’s. The lastest research, how to live a better life with PD, and anything new. He is on UTube. I am a member, which is free, and gives you more videos early. It is free to Subscribe to his show and you will see more of his programs.His wife has a part at the end and talks about things that help Caregivers & she is a blessing too. I hope you give it a try. I will be praying for you my friend.
Love, Hugs, & Blessings
Carol
Scottsmom 😊

2 days ago
A MyParkinsonsTeam Member

I started on a nicotine patch and it has really helped me with my shakes! I started with a 7.5 patch and after a week I went down to a 3 mg patch. I wear one daily. Many folks think I’m crazy, but I have noticed an improvement in my shakes and my balance. Good luck

3 days ago

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