Check out TAF
The assistance fund
Don't know if it will help
Just trying
This medication give me my life back.
I can walk perfectly, dance and back in running.
My mom has PD and we have tried Entacapone & Amantadine with negative results, i.e. her dyskinesia getting much worse. Her neurologist has prescribed Nourianz for her to try next. We are waiting for… read more
Has anyone been put on Nourianz? I have been on it now for about 5 weeks and i am still experiencing off times in late morning and it gets worse at night! I am only taking one 20 mg pill in the morning.
Same with me; I've been on Nourianz for 2 months and at first felt that it was helping, but now am not so sure.
I have a friend who was taking it. Said it was quite expensive with his insurance, but he liked it. He had gait problems and freezing problems before, and never considered a DBS because they… read more
And how do you deal with them and what do you do during these off times? Bean
Balance, gate, gets my back stiff. I chew 1/2 tab of C/L and ly down or I get on my recumbent bike
Anyone on neupro patch
I’m on the patch It’s been a year. I don’t notice any issues
Hi! I have experienced off times now for 6 months. I have been on Nourianz now for almost 4 months. Just wondering how long your off times last. Do they ever go away? I also take 18 CL every day now and I also take 1.5 mg of extended release Pramipexole every day. Are off times something that will come and go throughout this disease?
Yes! I usually am pretty careful not to have a lot of protein. If I do have too much protein I can always tell immediately and my pills don’t work!
I am 60 years old and have had PD for 15 years. My Neuro is suggesting I have DBS. Am I too young? Should I wait a few more years?
I do take quite alot of meds, carbo/levo (Rytary 2 pills every 3 hours, Amantadine and depression meds.
Any suggestions?
Thanks!
Donna
Yes, have it done if you can. I was 65 when I had DBS done, my dr. wanted me to go years ago but I kept putting it off. Although I still take carbi-Levo pills every two hours. Bean