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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Any One Experienced A Noticeable Difference In The Effect Of Their Medication, Levodopa, After A Colonoscopy?

Has Any One Experienced A Noticeable Difference In The Effect Of Their Medication, Levodopa, After A Colonoscopy?

Seriously, here is the explanation. For as long as I can remember, 2-3 years, I have suffered from sleep attacks. My MDS thought it was probably a side effect of the Ropinirole (requip) so we lowered the dose. Had little to know change on my sleep attacks. I suspected the levodopa do to the observation that 20 minutes or so after I take it I am very sleepy. If I am idle, I will sleep, usually in the form of a sleep attack. On the morning of my colonoscopy, I took none of my am med to… read more

posted September 28, 2015 (edited)
A MyParkinsonsTeam Member

I forgot to mention the Narcolepsy----I have it mostly during the evening hours. I fall totally asleep in as little as 45 seconds and sleep for varying lengths of time. It feels like I was asleep for 5 minutes, when it was actually over an hour. This was diagnosed during one of my sleep studies specifically designed to find this out. I forget the whole name of it, but it was multiple sleep level something.

posted December 19, 2015
A MyParkinsonsTeam Member

I was found to have a version of Narcolepsy----especially during the evening hours. My sleep studies indicate that I have mild obstructive sleep disorder and I also consistently am missing part of my REM sleep.

posted October 5, 2015
A MyParkinsonsTeam Member

Regular Requip made me extremely sleepy. Switched to extended release and the problem was solved.

posted October 1, 2015
A MyParkinsonsTeam Member

I everyone, this is Rosie 2
Today is Thursday Oct 27, 2022 I take Azilect every day , I don’t see any changes or what it suppose to help with . So, I stopped taking it for a we or so & nothing happened. Doctor said it works well with carbidopa &
Levodopa. I couldn’t tell .
So, I went back to taking it again nothing happened!
I have accepted Parkinson.
Now I fight myself in trying my best to help me .
Reading, excerising with YouTube on tv helps me feel less alone . The instructor talks to you which makes me feel like if I was actually there . Now, I trying to locate
anyone on same team if , anyone lives close to me .
Don’t want to interrupt your life . Just met you to say I’m here if you like to just talk about anything or just listen to you . Just like meet someone on my team with Parkinson. So, I won’t feel so alone. Maybe eventually
be friends . Most of my friends have disappeared
Or who knows where have they gone to . Thank you

posted October 27
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I was referred to a Lung/Sleep Specialist because my oxygen levels dip so low when I talk or do too much and I sleep terribly. My Neurologist put me on Nortriptilyn and Clonazepam at bedtime because I was falling asleep ok, but not staying asleep. My neurons in my sleep part of my brain are all screwed up. So, I was sleeping a little bit better, but not great. ( I also take pain pills at bedtime and then again around 4 am when I wake up and am in pain). I had several sleep studies done, around 5, and the findings were that I am missing part of REM and having "respiratory incidents" about 30 times per night. That's when I stopped breathing and my oxygen dropped down to about 86. They each lasted about 30 - 45 seconds. I had a sleep study with CPAP and I met one of the two indexes that Medicare accepts for giving me a machine at home. Medicare used to accept one or both of the two indexes, but thanks to our current health care changes, I didn't meet the qualifications on the index that they now accept. My Neurologist doesn't want me taking sleeping pills. We tried one Melatonine and that helped, but I was still having some trouble. Started me on two Melatonine and that seems to be working well for me. I still wake up around 4 because my body is so used to that, but I am able to go back to sleep easier. I also take naps when I need to. I hope this answers your questions.

posted December 19, 2015

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