Seriously, here is the explanation. For as long as I can remember, 2-3 years, I have suffered from sleep attacks. My MDS thought it was probably a side effect of the Ropinirole (requip) so we lowered the dose. Had little to know change on my sleep attacks. I suspected the levodopa do to the observation that 20 minutes or so after I take it I am very sleepy. If I am idle, I will sleep, usually in the form of a sleep attack. On the morning of my colonoscopy, I took none of my am med to… read more
I forgot to mention the Narcolepsy----I have it mostly during the evening hours. I fall totally asleep in as little as 45 seconds and sleep for varying lengths of time. It feels like I was asleep for 5 minutes, when it was actually over an hour. This was diagnosed during one of my sleep studies specifically designed to find this out. I forget the whole name of it, but it was multiple sleep level something.
I was found to have a version of Narcolepsy----especially during the evening hours. My sleep studies indicate that I have mild obstructive sleep disorder and I also consistently am missing part of my REM sleep.
Regular Requip made me extremely sleepy. Switched to extended release and the problem was solved.
I everyone, this is Rosie 2
Today is Thursday Oct 27, 2022 I take Azilect every day , I don’t see any changes or what it suppose to help with . So, I stopped taking it for a we or so & nothing happened. Doctor said it works well with carbidopa &
Levodopa. I couldn’t tell .
So, I went back to taking it again nothing happened!
I have accepted Parkinson.
Now I fight myself in trying my best to help me .
Reading, excerising with YouTube on tv helps me feel less alone . The instructor talks to you which makes me feel like if I was actually there . Now, I trying to locate
anyone on same team if , anyone lives close to me .
Don’t want to interrupt your life . Just met you to say I’m here if you like to just talk about anything or just listen to you . Just like meet someone on my team with Parkinson. So, I won’t feel so alone. Maybe eventually
be friends . Most of my friends have disappeared
Or who knows where have they gone to . Thank you
@A MyParkinsonsTeam Member, I was referred to a Lung/Sleep Specialist because my oxygen levels dip so low when I talk or do too much and I sleep terribly. My Neurologist put me on Nortriptilyn and Clonazepam at bedtime because I was falling asleep ok, but not staying asleep. My neurons in my sleep part of my brain are all screwed up. So, I was sleeping a little bit better, but not great. ( I also take pain pills at bedtime and then again around 4 am when I wake up and am in pain). I had several sleep studies done, around 5, and the findings were that I am missing part of REM and having "respiratory incidents" about 30 times per night. That's when I stopped breathing and my oxygen dropped down to about 86. They each lasted about 30 - 45 seconds. I had a sleep study with CPAP and I met one of the two indexes that Medicare accepts for giving me a machine at home. Medicare used to accept one or both of the two indexes, but thanks to our current health care changes, I didn't meet the qualifications on the index that they now accept. My Neurologist doesn't want me taking sleeping pills. We tried one Melatonine and that helped, but I was still having some trouble. Started me on two Melatonine and that seems to be working well for me. I still wake up around 4 because my body is so used to that, but I am able to go back to sleep easier. I also take naps when I need to. I hope this answers your questions.
We never share your personal information with anyone.