@A MyParkinsonsTeam Member. I suppose that no matter the reason for our loved ones feeling displaced, whether it be PD, Dementia, Alzheimers, brain damage, or other disease, it is going to break your heart. One... because of where your loved one has gone. And two, because you will feel abandoned and lonely. However, sometimes it is God's mercy that puts them in that condition. If they were completely lucid, there would be more pain for them than not. They would still remember everything and realize their condition may be hopeless. They could still ponder and regret. When these things happen, it is God's Grace that helps them to forget and their emotional pain is always temporary and fleeting. It is truly you remaining from the two of you to pick up the pieces so you can continue living out the remainder of your life. The pain is mostly yours. Your loved one is spared much pain by his/her temporary mind presence. At some particular point, they are truly not there...they are already gone.

If I stop and think about this, it actually soothes me to know the loved one is not in as much pain and discomfort as their condition might dictate. You both have God's Mercy. May God abide with you. Sterling

Hi Cathy, reading how your husband is about sleeping is very similar as my husband. Lately when he wakes up especially at night he gets confused, also he mistakes things like he had fallen asleep in the chair which over looks the garden, and for a time after waking he thought the clothes pegs were people outside. Every now and then he has these episodes of confusion. My husband takes Co-Benodolpa. But he does have heart problems as well and has low blood pressure because of his meds. So the docs are limited when trying different drugs. He was diagnosed in 2009.

My husband also comes with how he better get home. I tell him he is home but often he does not believe me. I am trying to not get upset when he does this....

Thanks everyone for your support and kind words. I will be seeing the PD consultant on Wednesday and I will let you know what he said.

Taffy hugs to all

@A MyParkinsonsTeam Member. hallucinations can be caused by some of the meds. There is some info here in Q&A section on hallucinations. Posted I think by @A MyParkinsonsTeam Member. Hope this helps.

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