Well my husband does have Lewy disease as well as pd. But because of him being on a lot of meds already for pd. And heart problems they don,t want to give him anything while we are managing. We have spoken about it together and come up with a plan that we will deal with it as and when things occur. Thankfully we have faith to deal with daily issues as they happen. We are fortunate that we live in a country where we can get the help and support when we need it. Most importantly we are Blessed we have a very good network of very close friends and family to support us, I feel so sorry for ones who don,t. Somehow knowing what we are dealing with helps.

Alan I found your information fascinating, my husband has a lot of the symptoms you described. I,m abit confused as to thinking whether his symptoms are caused now be Th medication he takes for the PD. He takes a lot of meds for heart problems as well. But for PD he takes Madopar Levodopa + Benserazide 100/25 mg 5 times a day. He is waiting to be checked out with a psychiatric team to see whether he has Lewy disease. I sometimes wonder what difference it would make to my husband if we altered his med to see if it would make him worse. But afraid to take the risk. My husband himself would stop all meds if he could, because of how he feels. Thankyou Alan.

I have had one single hallucination. I was painting my toenails bright red. I saw a large fly on the end of the nail polish brush. I knew it was not real and the fly disappeared in an instant. At the time I had just started Sinemet 12.5/50 x3 and had not reduced Requip from 16mg down to 8mg (which is my dose now). Consultant noted this as a dose of more than 16mg of Requip for me may well be a trigger for hallucinations.

@A MyParkinsonsTeam Member I believe Mirapex is "old school" with many negative side effects, and designed for RLS.... Alan

New school is using Sinemet that was designed to treat PD... and used with Comtan for extending "on" time...

What is Sinemet ? http://www.drugs.com/cdi/sinemet.html

Treating symptoms associated with Parkinson disease and parkinsonism-like symptoms caused by other conditions. It may also be used for other conditions as determined by your doctor.

Sinemet is an antidyskinetic combination. Levodopa is transformed by the body and the brain into a substance that helps to decrease tremors and other symptoms of Parkinson disease. Carbidopa helps levodopa to reach the brain.

Possible side effects of Sinemet:

All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome: Abnormal dreams; constipation; dizziness; drowsiness; dry mouth; headache; nausea; trouble sleeping; vomiting.

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What is Mirapex? http://www.drugs.com/mirapex.html

Mirapex (pramipexole) has some of the same effects as a chemical called dopamine, which occurs naturally in your body. Low levels of dopamine in the brain are associated with Parkinson's disease.

Mirapex is used to treat symptoms of Parkinson's disease, such as stiffness, tremors, muscle spasms, and poor muscle control. Mirapex is also used to treat restless legs syndrome (RLS).

Immediate-release tablet (Mirapex) is approved to treat either Parkinson symptoms or RLS. The extended-release tablet (Mirapex ER) is only approved to treat Parkinson symptoms

Mirapex side effects

Side effects such as confusion or hallucinations may be more likely in older adults. You may have increased sexual urges, unusual urges to gamble, or other intense urges while taking this medicine..

Get emergency medical help if you have any signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat. Some people taking Mirapex have fallen asleep during normal daytime activities such as working, talking, eating, or driving.

•hallucinations (seeing or hearing things that are not real);
•extreme drowsiness, falling asleep suddenly, even after feeling alert;
•tremors, twitching or uncontrollable muscle movements;
•vision problems; or
•unexplained muscle pain, tenderness, or weakness with fever or flu symptoms and dark colored urine.
...

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A MyParki...

@A MyParkinsonsTeam Member,

Did you know??? Sinemet comes in several dosages and ratios??? What exactly is he taking ??

Sinemet 25/100mg has been close to a miracle for me..... But several folks that I've met on MPT, inadvertently got prescribed Sinemet 25/250mg and have experienced nothing but grief... Check it out, and please let me know.... Alan

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A MyParki...