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My mother is 72 and has PD and Bi-Polar disorder. I don't sleep at night or get to leave the house or even go to the bathroom without her calling me. I am literally losing my mind. That is not a figure of speech, I am on anti-depressants and anxiety and ADD meds just so I can stay up. I haven't slept in months or even a year. My husband died 3 months ago and my 19 year old son came home. Everyone who helps me get stressed out and quits. Her insurance doesn't cover a caregiver so its just… read more
Bridge, I'm sorry to hear what both you and your mother are going through, but you need to start to think of you and get some help immediately. You may not want to hear this but you need to get help for your mother too, by putting her in a nursing home. I am saying this because I had to do this a year ago because my mom was not able to take care of herself, and it became to much on my health and my husband, and the truth, it was the best thing I did, because my mom is doing good and I have piece of mind. I hope this helps you to make up your mind.
@A MyParkinsonsTeam Member. Dear Bridgette. If you have the strength, please get on the phone and call Barbara at NORD at (Phone number can only be seen by the question and answer creators). NORD is an advocate for rare diseases such as PD. Medicare also have advocates for help and care for your mother. Look on the back of her Medicare card for their number and ask for an advocate to help you figure out what to do.
Your Mother or you do not function as is and where you now are...at home. She must have the care she needs and you have exhausted yourself trying. It's a nightmare that you need to wake up from and get on a new path. Your mother and you deserve to have better. You also could call your local senior center and ask where to get help...fast. Stay close to us. We are here to help see you through this. Walk with God. Sterling
Get her into either assisted living or a nursing home. They will take all her resources (social security, savings, etc) and then Medicaid will pay for it--I assume you live in United States. I know how bad it can be and the desire to end it all. I care for my husband and finally had to use savings to pay for night care giver. Sleep deprivation is horrible!!! Call your state Medicaid office or counsel on aging.
I feel your pain, Bridgett. Please ask your local agency for help with this overwhelming problem asap by using your phone, or ask your family member, your son to call the social services in your community for help. They should be able to direct you on where or who to call for help.
Yes, check your state health and human resources department. In West Virginia, they have a program that provides caregivers for several hours a week to give you breaks and allow you to get other things done. I'd also check with your local Alzheimer's Adsociation. Little known fact, the Alzheimer's Association also has a mission to assist those with PD. Also, this may be hard to accept, you may have to think about a nursing home. We had to put my father-in-law in a nursing home when his dementia got too much for us to handle. Medicaid will pay for it, but it can be a complicated process.
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