I have peripheral neuropathy from 39 years of type 2 diabetes, and am numb from my toes to my knees. I also occasionally get sharp pains in my feet. The pain is mostly controlled by taking generic Neurontin (Gabapentin). I have an atypical variant of Parkinsons that causes Postural Instability and Gait Dysfunction.

Oh thank you. I get pain in my legs, arms shoulders. ok! all over. I walk as if drunk. In the morning, if I am going out, I have to get up by 6am to give myself time to resume some sort of normality. I walk into walls and lurch about, I wear round my neck. in case I fall. I try to explain to my so called family, that I can walk, but not without terrible pain. I am hoarse and breathless. Mt GP is confused by this. I have severe depression I see a psychiatrist and have a Mental Health nurse. ( this is attention seeking according to my Son.) We do need to raise awareness of the "hidden" Parkinson's

I am so sorry to hear about your pain . I have Parkinson's and diabetes . I have diabetic nerve pain. And pain from my Psrkinson. However you seem to be in more pain than I have. May be someone can help you soon , I am praying that God will take away the pain you are ha I having.

Hi Sheltiesue, the pain with PD is horrible & it's the big part of it that nobody can see so it's hard to explain. It took me a long time to find the right words to describe how I am feeling everyday to my Dr, etc. I feel like I am walking on a narrow brick fence with a blind fold on. Very unsure if I'm safe or not. My head is so fuzzy that I feel like I am spinning all the time. The soles of my feet are so sore that some days I can't even bare them to touch the ground. My anxiety is at its highest that I've ever had. I feel nauseous most of the day & cry the rest of the day. These are the things that nobody sees & therefore they can't understand why we are feeling the way we do. Good luck to you all

to big man Larry...I am so glad that I joined this MPT because everyone thought I was crazy when I told them that my Legs feel like I've been beat with a baseball bat. And my feet feel like broken rocks and I feel like walking on broken glass. And then my legs feel like they are full of lead....its an indescribable pulling down of hardness and my left leg gets numb. The pain is intense...My neurologist asked me on a scale of 1-10 what would you rate your pain and I said Oh it busted that little scale I would say 100..He says that bad huh? I told him profoundly YES. He asked if when I take carbadopa-levidopa does that PD med help your pain..and I said yes...to which he said then I am afraid it is the Parkinsons. I was diagnosed with PD in 2001, 15 long years., and I am tired of it. I am tired of people staring at you when you have diskenesia and you try to schedule things when to take your med...sometimes I will think if I cut the pill in half maybe I won't get any off time and can make it to the party and not have to worry. Since I have the other half pill to take if I start to feel that hardening of the legs again. Does anyone else out there do this?

I have done a lot of research on Parkinsons disease..and believe it or not I found out that Parkinsons mimics things in other diseases.. The scientific researchers at the University of Va found that PD mimics Neuropathy in the legs...so I think that is what I have..You don't have to have diabetes to get it. My brother-in-law has it and he is not a diabetic. Its a shame that at times when you have a weak spell and you can't go walking because you can't walk...I have tried everything. I tried to find the most comfortable shoes...like Nike tennis shoes with Dr. Schol's gel pads inside and I would try forcing myself to walk and fight this awful disease...but it doesn't work it just makes the pain worse and then you can fall so easy. So it is what it is, I really hope they can find a cure and soon.