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Information About Stages Of Parkinson's.
A MyParkinsonsTeam Member asked a question 💭

Stage 1 = mild
Stage 2 = moderate
Stage 3 = complex
Stage 4 = advance
Stage 5= end of life
Pd can also jump up in half steps ie stage 3.5 and stage 5 although called end of life pd is not terminal you die WITH pd not BECAUSE of pd.

posted August 8, 2017 (edited)
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A MyParkinsonsTeam Member

You can see a variety of all symptoms at each stage the only differences they gradually will get worse and sometimes you can develop other symptoms as you condition gets worse. But as we don't all get the same symptoms that's an impossible question to answer. The Parkinson's UK forum has a list of what symptoms can develop I recommend that you look on that and have a look it's also a free charity to join it. Doesn't matter where you live in the world you can still join.
Their website is very informative most of what I've learnt I've learnt through that website best wishes good luck BB x

posted August 11, 2017 (edited)
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member blue
My tablet for some reason or the other refuses to have your Betty any other way.I have reset it so many times it is unreal The second best it is ok with.
Opinions are like your head everyone has one.I personally appreciate the information you download People are always asking the 5 steps of Parkinson's. Yet, when you download it they you don't want to see steps 4 an 5
My Neurologist said he has never had person to die from Parkinson's. That there is always something else..
Again thank you for all the information you bring to our attention. Take Care God Bless Hugs 😃😃😃😃

posted August 26, 2017
A MyParkinsonsTeam Member

Sorry to disagree with you BB. Not sure I would want to know or follow the stages that someone has designated my disease will follow till death, Sort of cuts out hope and intervention. We are also creatures who are influenced by our own and others’ expectations. So I guess I’ll not follow the chart and hope my graph will be different.

posted August 25, 2017
A MyParkinsonsTeam Member

Totally agree but unfortunately doesn't work for everyone not everyone is capable of exercising like mad personally my DBS system has been the best decision I ever made considering I'm stage 5 now and yet most Newly trained neurologist can't tell I've got Parkinson's anymore because it is so effective I actually called it dog's bollocks surgery.

posted June 5, 2021
A MyParkinsonsTeam Member

@MyParkinsonsTeam users... afraid.
My observation of Parkies is many are afraid. They're afraid to know the symptoms and the outcomes of PD. Or they wish to remain ignorant, as ignorance is bliss!! Some are just lazy and do not want to take the effort to learn about their condition!! I the beginning of my now 16-year journey with PD, I was lazy, didn't want to take/make the effort to read up and learn about PD! Plus, I think I may have been in a bit of denial! I am not one to let things pass me by. This is my parade. I want to KNOW who is putting in a marching band or float in my cavalcade and not be blind-sided!! I get very frustrated with Parkies who bury their head in the sand. I was speaking with a Parkie friend and she had her own business. She is about the same age as me, maybe a bit older. She was complaining that before PD (she had been diagnosed about 6 years ago) she could run her business as well as her husband's! I told her at our ages we couldn't do that now even if we did not have PD!

BettyBlue, Thank you for your efforts to educate the PD community!!

For any of you willing to tread down the learning highway, the best resource I have found is to order or download is to go to the Davis Phinney Foundation website (google it) and get Every Victory Counts. Read it cover to cover. You do not have to read it in chapter order!!

posted May 6, 2020

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