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Tremors, Spasms,and Other Unpleasantries
A MyParkinsonsTeam Member asked a question 💭

Do your tremors and spasms vary in intensity and number from day to day and time of day? Somedays i shake so bad i can barely feed myself. Maybe later that same day or the next day, they are gone. The samething applies to dystonia and spasms.

posted August 1, 2020
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A MyParkinsonsTeam Member

Jettalyn yes mine come come in with a furry...sometimes last days and other times just a short while...the longer I have " Off Time" then the more days afterwards I am extremely worn out tired...I have horrible muscle spasms in my legs and back muscles. Artane is a mild muscle relaxer and I take it occassionally or I will use biofreeze to help relieve muscle spam pain...its always something new hon...and thats why we are all here...

posted August 1, 2020
A MyParkinsonsTeam Member

I tend to have a very similar problem. Mine, however, tend to last a bit longer than you describe—usually a couple of days or longer. They also seem to increase in intensity when stressed or doing something, especially if its intense (like right now as i type). Have to remember too my primary diagnosis is moderate Lewy Body, which may explain some of the differences.

posted August 1, 2020
A MyParkinsonsTeam Member

Jettalyn, I hear you, PD is tricky. It's just awful when all the symptoms appear. Then they're gone for a bit, it's hard to understand. I don't realise my hand is shaking until I go to do something and it's out of control. Does anyone ever notice that? E.g. I go to pour something or write and my hand is shaking, I didnt even realise and eventually it goes. So yes they do vary with intensity. I've lost my smell but every now and then I can smell something, I can't work it out. But know you are not alone Jettalyn x

posted August 1, 2020
A MyParkinsonsTeam Member

Yes my tremors and muscle spasms/cramps are very erratic and the medication does not always help. My Neurologist has discussed and recommended me for DBS. Going through suitability tests at the moment.

posted August 28, 2020

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