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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I want to start a Parkinson’s support. Can anyone give me suggestions

A MyParkinsonsTeam Member asked a question 💭
Colorado City, AZ

I live in Aurora Colorado and I can’t find a support group. I have had Parkinson’s for twenty years I would like to be able to talk to people with Parkinson’s face to face. I would like to meet people who have not heard of my Parkinson’s team and tell them about it. I would appreciate any suggestions.
Pjm

January 28, 2023
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Reactions
A MyParkinsonsTeam Member

I think that’s an excellent idea. I use both. You might start by deciding on an information date then make up an information paper with what, when, where, time and date (make lots of copies) then go to doctor offices first and ask if you can post them, then try grocery stores and any other places with a place to post (as many as you can, and far out from town as you can). Have the meeting a few times before you decide to give up or continue on (I hope). Ask the attendees what kind of group they want; information, social, mixed etc. how long, and how often etc. Does that help any?

January 28, 2023
A MyParkinsonsTeam Member

I am not in a PD support group. I want to find one in the next year. I had a stroke in 2011 and attended stroke support group. Support groups are the best!

January 28, 2023
A MyParkinsonsTeam Member

Here’s a list of the members on this site who live closest to you. Sorted with the newest first.

https://www.myparkinsonsteam.com/people

January 28, 2023
MyParkinsonsTeam

Here are some suggestions for starting a Parkinson’s support group:

1. Join Existing Groups: Consider joining an online group such as MyParkinsonsTeam or find an in-person group to share experiences and acknowledge feelings about caregiving
2. Seek Professional Help: If needed, ask your doctor for a referral to a mental Show Full Answer

Here are some suggestions for starting a Parkinson’s support group:

1. Join Existing Groups: Consider joining an online group such as MyParkinsonsTeam or find an in-person group to share experiences and acknowledge feelings about caregiving.
2. Seek Professional Help: If needed, ask your doctor for a referral to a mental health professional or psychotherapist.
3. Communicate Needs: Openly communicate with friends and family about what help you need.
4. Utilize Resources: Make use of all available financial and social resources.

For more detailed guidance, you can visit resources like MyParkinsonsTeam.

July 21, 2024
A MyParkinsonsTeam Member

Does your local city have a parkinson's disease support network??

March 26, 2023

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