Do Others Find Themselves Feeling “normal” But Then Learn Other See Then As Having Changed? | MyParkinsonsTeam

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Do Others Find Themselves Feeling “normal” But Then Learn Other See Then As Having Changed?
A MyParkinsonsTeam Member asked a question 💭

I do not see changes in myself, for instance I have begun repeating myself with no memory of having said something before, or I don’t realize what I’m saying makes no sense. Does anyone in your family tell you or doctor so it can be addressed? Or are you left with no knowledge of the change because no one says anything?

posted May 23, 2023
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A MyParkinsonsTeam Member

Rod,
I am sad that you think you & your wife would be a burden to your children. For hundreds of years it was a natural part of life that as parents age the children care for their parents. The times have changed now & parents are at times not given the respect, importance, & value that they deserve. I am not referring to your children, but your belief that you would be a burden to them. You gave them life, your whole self, & provided for their needs. They are who they are today because of their parents. How could a parent be a burden? Society has created a “what’s best for “Me” generation. “ I am & my comfort is most important.” There are times that we can choose to do what is best for our parents. It may inconvenience us for awhile, but love is greater than our comfort. Our parents need their children to show their love in actions not just words. Probably your children are grateful for all you have given up for them and would see their care for you & your wife as the blessing that it would be. To give to their parents the feeling of being of value & important to them as you have given to them. No, you are not a burden to your children, you are a great blessing. I think we owe this to our parents. To be able to give back a little bit of all they have sacrificed for us out of love.
Love & Blessings
Carol
Scottsmom 💕

posted May 24, 2023
A MyParkinsonsTeam Member

The difference I have notice in myself I now move like slow motion BUT I still move. It just takes longer to do anything like bathing, dressing . I have always been a slow walker so that doesn't bother me. My balance isn't as good but that could be age (82). They all say just keep moving so I do.

posted May 25, 2023
A MyParkinsonsTeam Member

Great post Rod4
My wife does the same thing at my visits to the neurologist

posted May 24, 2023
A MyParkinsonsTeam Member

My wife of 44 (+) years, Rose, lets me know about all the changes she recognizes. She encourages me to focus on areas that she notices are different, so I can adjust my exercises to work on them. This is a blessing, but also can also be overwhelming. I have my teary moments too. My biggest concern is, who will take care of her when I can't? Our children and grandchildren are 5 and 6 hours away. We are looking at how we can possibly move closer, but not to close, so we don't become a burden to them. My walking is good some days. However, the bad days can really be a struggle. The PD gait pattern causes me to really struggle on those days. Fortunately the bad days are not as frequent as they were before the change in dosage of my meds. My wife joins me at my Dr. and PT visits and she reports changes as she recognises them.

posted May 24, 2023
A MyParkinsonsTeam Member

I am not aware of anyone seeing changes and not telling me. I am well aware of my inability to explain things in a way that I used to. It seems to come out all googly goo. I am aware that my thinking is much different so I guess for me I’m not much help to you. My husband and I are very close and we talk so we don’t have a problem with him telling me “Carol, we just saw this movie” or “honey I can’t understand what you’re trying to tell me”So this is the new me, aren’t you glad you married me? And he says oh I sure am. I’m blessed. I am so glad that he can be real with me in a way that doesn’t hurt my feelings. in my opinion, family and good friends should be able to gently tell us what they’re seeing and hearing. If they don’t, we won’t know, and I want to know, but I think we should be sensitive and gentle when we do so.

posted May 23, 2023

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