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I’ve had DBS, but tremors have returned and I’m taking 8 Sinimet 25-100 daily. Started taking Mirapex (Pramipexole) again. It works pretty good but it’s interfering with my sleep again (4 hours per night with Mirapex vs 8-9 hours without it last week). Amantadine didn’t work at all previously, and I won’t keep taking Mirapex if it’s this disruptive. I’m starting accupuncture, but does anyone have any suggestions for agonists so I can discuss them with my neurologist?
Diagnosed November 21, 2017, had DBS implantation surgeries March 30, 2021 (electrodes) and April 12, 2021 (stimulator). So roughly three and a half years. My original neurologist in Fairfax VA wanted to wait until at least 4 years, but I was more aggressive, as was my new neurologist in Wilmington NC, since I wasn’t sleeping much, wanted minimal meds, and wanted to take back from PD some control. So glad I did, now I’m working to improve fitness and lose more weight (have lost 50 pounds since 2020, have maintained it, and another 10 pounds will put me below my college football weight!).
Neupro patch has been working great for me so far!
I hope you don't mind me asking a question instead of answering yours. How long have you had PD before you tried the DBS?
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