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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Need A New Dopamine Agonist.

A MyParkinsonsTeam Member asked a question 💭
Wilmington, NC

I’ve had DBS, but tremors have returned and I’m taking 8 Sinimet 25-100 daily. Started taking Mirapex (Pramipexole) again. It works pretty good but it’s interfering with my sleep again (4 hours per night with Mirapex vs 8-9 hours without it last week). Amantadine didn’t work at all previously, and I won’t keep taking Mirapex if it’s this disruptive. I’m starting accupuncture, but does anyone have any suggestions for agonists so I can discuss them with my neurologist?

August 26, 2023
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A MyParkinsonsTeam Member

Diagnosed November 21, 2017, had DBS implantation surgeries March 30, 2021 (electrodes) and April 12, 2021 (stimulator). So roughly three and a half years. My original neurologist in Fairfax VA wanted to wait until at least 4 years, but I was more aggressive, as was my new neurologist in Wilmington NC, since I wasn’t sleeping much, wanted minimal meds, and wanted to take back from PD some control. So glad I did, now I’m working to improve fitness and lose more weight (have lost 50 pounds since 2020, have maintained it, and another 10 pounds will put me below my college football weight!).

August 26, 2023
A MyParkinsonsTeam Member

Neupro patch has been working great for me so far!

October 12, 2023
A MyParkinsonsTeam Member

I hope you don't mind me asking a question instead of answering yours. How long have you had PD before you tried the DBS?

August 26, 2023
A MyParkinsonsTeam Member
August 26, 2023

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