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A MyParkinsonsTeam Member asked a question πŸ’­
Harrisburg, PA

I have insomnia and sometimes I can't fall asleep nor stay asleep. In the last month I'd say, I sleep too long mostly, between 9-12 hours. I have felt much more exhausted in the last year I'd say, I've had PD for 2 years. I'm thinking it's from the P.D. I see my neurologist this week so I certainly will inquire, but I wanted to get you helpful opinions.

Thanks for your help. πŸ’™

February 22, 2025
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A MyParkinsonsTeam Member

It is very common to have less energy fighting Parkinsons. My husand is in his 14th year of Parkinsons and even in his early stages he felt tired often. Now, he sleeps a lot, which is great especially as he has nerve pains in most areas of his body. I believe the most important thing for people with Parkinsons is to try to reduce as much stress in your life as possible and to get as much rest as possible. I have seen Parkinsons patients try to keep their normal schedules, put themselves in stressful situations, participate in too much exercise, etc. They get worse quicker. Think of Neal Diamond as he insisted on doing a tour after his diagnosis. It was a disaster and he had to quit eventually. His Parkinsons body needed to be treated differently than it was before he was diagnosed, and he didn't take that seriously. Now he knows.

February 25, 2025
A MyParkinsonsTeam Member

PD gave me the ability to stay awake except for an hour, am I lucky or what? Since you are probably awake have a good day in spite of PD. Hugs πŸ‘‹ 😊 πŸ«‚ Carol

March 20, 2025
A MyParkinsonsTeam Member

Abbe: Try to stop focusing on how much you are sleeping especially if you don't have responsibilities that require you to be up. Parkinsons does impact sleeping and can run from sleeping all day some times to not sleeping at all. My husband got up at 5PM today. He went to bed at 2 am. Maybe tonight he will not sleep as well, but he gets up and watches television and might take a long nap during the day. In otherwords we dont obsess about how much sleeping is done, just go day to day. Of course, we don't work and have no responsibilities, which is imporant for Parkinsons. Some days he is in Parkinsons pain with muscle cramps and can't get to sleep. Again, we get up until pain passes. I sleep when he sleeps so that I can take care of him when he is up. He is still ambulatory, but he is getting close to a wheelchair. Things will change again when he is, but we will still play it day by day.

February 26, 2025
A MyParkinsonsTeam Member

No. Usually up at 3 am
Then the crazy stuff shows up

February 25, 2025
A MyParkinsonsTeam Member

I have severe insomnia and do not sleep well at night at all, symptoms include restless leg, phelm build up, shoulder pain when sleeping on left side, over active mind, feet are numb and just can't get in a comfortable position to sleep as well, as other symptoms are exhibited and I can't sleep during the day !!!!! So, I am fatiged all the next day, bummer !!! LOL I have adjusted my lifestyle and sleeping habits to get as much sleep as posible at night and day !!!! Here's to others, don't give up and try different scenarios and sleep times, our body needs sleep and PD does not care !!!!! Blessings Ed

February 22, 2025

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