Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I find myself taking backwards anyone else?

A MyParkinsonsTeam Member asked a question 💭
Canton, OH
May 7, 2025
 · 
Reactions

Answer Summary

Members connected warmly over the question of taking steps backward with Parkinson's, sharing that setbacks, word-finding struggles, and... Read more

Members connected warmly over the question of taking steps backward with Parkinson's, sharing that setbacks, word-finding struggles, and unpredictable symptoms are a common part of the journey. Several members described creative coping strategies, like turning communication struggles into a game of charades, renaming difficult moments with humor, and using the frustration of setbacks as motivation to work harder on exercises. A recurring theme was that each day brings something different, and leaning on community support, laughter, and encouragement helps members keep moving forward.

A MyParkinsonsTeam Member

Parkinson’s is a really long marathon. Every mile you do is different. Setbacks are always inevitable and frustrating. Keep hanging in there!

May 8, 2025
A MyParkinsonsTeam Member

No way. Thought I was the only one. In addition to forgetting stuff and specifically words that I used to have a larger vocabulary. I also found on this platform I'm liking my own post how special is that

May 10, 2025
A MyParkinsonsTeam Member

Did you mean Taking or Talking ? ! sun the in Island England from Tina you to morning good very a and ........

May 8, 2025
MyParkinsonsTeam

Taking steps backward can feel discouraging, but it's a common experience with Parkinson's disease. Many people have found that practicing patience and adjusting expectations helps manage these moments. Remember that some days will be better than others - it's not a sign of weakness, but rather part of the journey.

The key Show Full Answer

Taking steps backward can feel discouraging, but it's a common experience with Parkinson's disease. Many people have found that practicing patience and adjusting expectations helps manage these moments. Remember that some days will be better than others - it's not a sign of weakness, but rather part of the journey.

The key is to focus on what you can do rather than what you can't. Walking and regular movement remain beneficial, even if you need to modify how you do things or use assistive devices. A helpful approach is to practice self-kindness and let go of self-judgment. Try to be patient with yourself and remember there's no need to rush. Consider focusing on self-care activities and adjusting your daily routine to accommodate your needs. Many find that taking things one day at a time and celebrating small victories helps maintain a positive outlook.

May 7, 2025
A MyParkinsonsTeam Member

I do 3 point turns so I don't get tangled

3 days ago

Related Questions

View All

Does any one have episodes of falling backwards (retrograde propulsion ? T

A MyParkinsonsTeam Member asked a question 💭
Meriden, CT
July 13, 2017

Putting Myself First!
Physically, I smile...
If I seem fine...