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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Johannesburg, ZA
September 13, 2025
 · 
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Answer Summary

Members reconnected in response to a question about finding their online support team, reassuring one another that the community is still... Read more

Members reconnected in response to a question about finding their online support team, reassuring one another that the community is still active even if the site can be hard to navigate. Several members shared personal health updates, including falls, broken bones, new medications, and struggles with pain, tremors, and headaches, showing the real challenges many are facing. A recurring theme was the warmth and encouragement members offer each other, with many reminding the group that they are never alone and that support is always close by.

A MyParkinsonsTeam Member

Lot’s of great support here

September 13, 2025
A MyParkinsonsTeam Member

I'm still here, but I agree in terms of organisation this is one of the worst online communities on the web. If it weren't so full of helpful people, I'd have been long gone!

September 13, 2025
A MyParkinsonsTeam Member

Great day today after a trying yesterday with low blood pressur, passing out and falling. Bmut all is well and looking great now

September 16, 2025
A MyParkinsonsTeam Member

Hello, Colleen 957, this is MarilynWestcott, I haven’t posted anything for a while because going through new meds and a rough time with increasing pain, shaking and tremors. I’m having constant headaches. I just got my Botox shots which only last 6 weeks instead of 3 months. My left foot flops over to the left and doesn’t want to be straight and flat footed. I fell out of bed and broke my right collarbone, which is my dominant side. Then yesterday after leaving the hospital, I fell in the parking lot and at Walmart and a young woman, lifting me up in one move , then I was standing again. 🙌. I’m happy 😊 that I got my new eye 👁️ glasses and new hearing aids. I don’t have to put everyone on speaker phone, I can have privacy now. I have hallucinations of parasites eating my insides and out because have Adema infection all over my body, which is itchy. On the internet has pictures of bacteria throughout with different sizes of worms. I prayed about it and the Adema is healing slowly. Here is some hugs 🤗🤗🤗for you!

September 14, 2025
A MyParkinsonsTeam Member

Hay Colleen957. Just when I think I've found the answer. I get lost again.

September 13, 2025

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A MyParkinsonsTeam Member asked a question 💭
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