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A MyParkinsonsTeam Member asked a question πŸ’­
Wappingers Falls, NY
September 21, 2025
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A MyParkinsonsTeam Member

Sometimes I find that thinking to myself left right helps keep my gait from freezing up

September 22, 2025
A MyParkinsonsTeam Member

KIMP how right you are. I could talk the hind legs off a donkey when it comes to my experience of Pure Akinesia 😢 looking back it was about as much use to me as ten tons of manure in my life. Honestly it used to drive me nuts I would get so depressed about it. I would cry and punch things in anger because I didn't necessarily have Bradykinesia or Dyskinesia at the same time so I will be walking around pretty well and then with no warning whatsoever I would stop and that was it it. In my self I wanted to carry on while I was doing but I just could not move and sometimes it would be hours. I would have to go through the list of friends and family that I could call if I was really stuck. I got stuck in Halfords buying some tools. After what must have been close to three quarters of an hour, various members of staff watching me wondering why I was like a statue in the middle of the walkway the manager came over to me I explained but I don't think it made a lot of difference in the end he got me a chair and I sat on it feeling like an absolute Pratt. I was crossing Oxford Street in London and I stopped on the white line and made friends with the taxi drivers and the bus drivers Not 😲 I could always drive although on one occasion I thought I was going to die exiting a motorway when I couldn't lift my foot from the accelerator to the brakes ! I developed agoraphobia and lost contact with many people during that period. I say during that period because I don't suffer with it now. I switched to the duo dopa pump and I reckon it turn the clock back 10 12 years for me. πŸ₯³πŸ₯³πŸ˜²πŸ‘πŸοΈπŸ›«
Sending you hope and big hugs x

September 30, 2025
A MyParkinsonsTeam Member

Not really if I do it is so mild I would answer no. πŸ€“

October 1, 2025
A MyParkinsonsTeam Member

Thanks Phil, for taking the time to write this. Do you have tremors?

September 30, 2025
A MyParkinsonsTeam Member

Yes it can be frustrating you wash your dishes and you want to turn around to wipe the table and you can't seem to move

September 22, 2025

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