I hear you Lisa. I've started not mentioning little things to my husband, but I am being very watchful especially of his driving, as he's had a couple of incidents that were clearly from confusion. And I've heard my husband say things like you mention to his don't but not to me. Frustrating! After the couple of driving incidents, I later asked him what happened, and he said I was confused. Currently when he sees his neurologist, the doc gives him a mini cognitive test. So far he's passed but the minute he doesn't the doctor will order a more in depth test. If he doesn't pass, the doctor will take away his driver's license, which he is required by law to do. I dread that day. I also fear that his drug addict daughter will be able to persuade him to give her money, which we have worked very hard at drawing that line. So..... Thankfully we have this forum to talk about things and get some above. And if you don't already, I suggest you accompany him to his doctor's visits. It's pretty boring until something happens. Sorry to say, but I'm on that edge myself. Good luck, and maybe also see a counselor yourself. It helps me a lot. 💜
Thank you Michael. I'm new here so I'm not exactly sure what joining the team means.
Thanks Ginny. He was diagnosed 2 years ago, but in looking back, he clearly had it for over 5 years. And I agree, I think he may still be in the denial stage and he admits that sometimes he thinks maybe he doesn't have it. I'm thinking of possibly giving him a book on the 5 stages of grief and reading it with him. I didn't know, maybe it's too early. He hasn't fallen or hurt himself in any way, but the last driving trip we took, I think he had an issue with depth perception. He was just not driving with the care he always has. He came way too close to other cars for comfort several times I know everyone's symptoms are different. I'm just happy to have found a forum for discussion and advice. 💜
Seems that he shouldn't be driving;; ask the neurologist to address this.
I am right there with you! I actually got on this page to ask the same question this morning!!
My husband has an increasing number of non motor symptoms- urinary issues (he says he’s just getting old) , changes in bowel habits ( just changes in diet/ age), hiccups every day ( he never had them in the 8 years we have been together) and most recent development- coughing more often when just sitting (allergies). It is so frustrating. Anytime I try to address it, he minimizes it in a dismissive tone. When I told him he had a Parkinson tremor and needed to see a neurologist (I am a therapist so I knew the tremor), he dismissed it for a year- yet now? He tells his daughter he knew he had Parkinson’s a year before he was diagnosed and dismisses literally every comment or tells me that I am remembering things wrong.
I stopped saying things (at the advice of friends) but now- he is buying expensive supplements on line for these issues and says they are helping yet I am not seeing any changes. Failure to treat these things professionally (instead of google searching prostate support) impacts us both so it’s hard to know where to draw the line in keeping quiet.
Looking forward to seeing other comments!!
Blessings to you!
Lisa