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A MyParkinsonsTeam Member asked a question 💭
Long Island, NY
March 26
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A MyParkinsonsTeam Member

I had the exact same thing when I went to bed in the evening. I had to wear tight fitting sneakers to bed each night to keep my toes from curling but then I looked into DBS surgery and my doctor said this procedure would correct that problem. So I signed up to have it done and it completely cleared up my curling toes. Of course it didnt fix my other symptoms but I was happy that my toes were back to normal and I didnt have to wear sneakers to bed. Bean

March 31
A MyParkinsonsTeam Member

Defintely dystonia.

March 29
A MyParkinsonsTeam Member

@Queedianac, Page 4 of The Marionette and Dopamine
I may have the Levadopa and Carbodopa mixed up as to which one smooths and which one strengthens, but they're almost always, with a few exceptions, given together. Praise God, he made us with smart bodies, better than smart phones. Hopefully, our doctors know what medications to take, and our bodies know what to do with them! That's rather marvelous, I think. I should also point out that while candle wax and wires fix the way a doll on the outside, pills don't smooth and strengthen the same way either. The Levadopa and Carbodopa gives the brain the ability to move smooth and steady, but we're not perfect, yet; and certainly medicine hasn't been perfected yet. That's why the professionals are still "practicing!" When our bestie comes over or we get to visit with our grandchildren, or maybe we just hear a good song, we find it easier to make Dopamine and the other necessary neurotransmitters, so we have extra energy and sometimes find that we have more energy going through our bodies than we know how to handle. The result is that our arms and legs might jerk a bit, or a our toes, feet, fingers and hands might curl up funny from being too stiff, or other times we might look like we're dancing. No physician on earth can fix us like the Great Physician will. He will never give us too much or not enough. I don't even know if believers will need neurotransmitters when we go Home, but I know that mortality will put on immortality.
Do you know that you know that you have a mansion being built by the Master Builder? Have you received the gift of eternal life through Jesus Christ our Lord? It's already paid for in full because none of us could begin to make the payments. He didn't just cover the down payment. Jesus said, "It is finished." If you believe those facts, and trust that he'll never lie, he'll give you eternal life. Praise God! Amen!

March 27
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Page 2 of The Marionette and Dopamine
I forgot to tell you that dopamine is also associated with happiness! So, let's say that your best friend from high school shows up for a surprise visit, after not seeing her in nearly 40 years. You just got a new (to you), antique marionette and you want to use it to express your joy. You want to raise the puppet's arms straight up, but you hadn't realized how tattered the strings were that pulled the arms up, and the stiff wires that kept the downside of the arms from flopping weren't well fastened to the strings on the backside. You greeted your friend with big hugs and floods of kisses; made a kettle of tea and grabbed your supplies so that you could fix your marionette while you're visiting with her. The strings which bring the arms up get just a bit of a coating of candle wax to smooth the tattered twine. You straighten the sadly bent wires; and maybe replace a few. Your puppet is looking better by the minute,
As the candle wax smoothed, and the wires were strengthened so the Levadopa smooths your movements, reducing the tremors, and the Carbodopa strengthen your muscles to give you better control
~ Let's see if I've already typed too much. I don't have much to add, but I'm certain it will take me beyond the limit.
Please go to Page 3

March 27 (edited)
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Having Parkinson's Disease means that the brain is losing ability to produce new dopamine to replace the old which is no longer functioning as it should. One major purpose of dopamine is to control. If you have ever played with an old fashioned marionette (a string puppet), or at least watched one, you might understand this illustration. Each moving piece of the puppet has 2 strings. When one of the 2 strings is pulled, the other string to that specific moving piece of the puppet relaxes. The strings represent neurotransmitters such as dopamine and other neurotransmitters whose names I can't think of at the moment, but that's ok because we're going to concentrate on dopamine right now because it is affected the most by Parkinson's.
~ This is a great place for a break to end this page because we are only allowed 3,000 characters per entry. There is no known limit to how many pages I can post!
Don't worry. I'm exhausted and cold, so I will be diligent to make this as short and easy to understand as possible.
Simply scroll down to the next post, if I can get it done before someone else responds to your question. That's ok. You may want to read another story about dopamine or maybe, I could help my mother more quickly! (That's wrong. My mother's dead. I was going to edit it, but I don't even know how to fix it or what to change it to. Oh well Parkinson's is a trip.) Don't forget to finish reading my story!

March 26 (edited)

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A MyParkinsonsTeam Member asked a question 💭
Asheville, NC