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Misdiagnosed from March 2021 until January 2026. After a second opinion, it was confirmed I do NOT have Parkinson's. Thousands of pills, SINEMET, taken, (up to 16 a day) for a condition I never had. On one occasion, I ended up being sectioned in a mental health institution for 5 months, I even had ECT treatment, which was not pleasant, though I did ask for that myself. I put ALL that down to taking SINEMET, which I have researched myself and the response was "taking SINEMET and someone does NOT… read more
I hope you get answers soon.
What symptoms did you have that led up to the misdiagnosis?
And what are you doing now. Thanks
I asked a general question, I wondered if any one had been put in the same position as me. This site is for people to give advice and support, for people who reach out. YOU offer none of that! 'Now, I have no empathy for you'? What's that all about? YOU never did! Please feel free to block me' I WILL. 'I promise you won't be the first' that sums you up precisely. I promise I won't be the last, with your additude!
@A MyParkinsonsTeam Member YOU are really NOT coming across as a very nice person! I DON'T want you to offer me ANYTHING, obviously YOU have NO empathy or understanding of my circumstances and what I'm still suffering from. DON'T BOTHER REPLYING, I DO NOT WANT ANY MORE OF YOUR ABUSE, IF I HEAR ANYMORE FROM YOU, I WILL REPORT YOU TO THE ADMINISTRATOR.
Hi: Your hugs have meant a lot to me since i came down with this horrible disease. I am 83 and find comfort in knowing people care. I say prayers for everyone just trying to cops
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